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Hi everyone, I don't really know why I'm writing this now, but after nearly 2 years clear, I’ve finally got a bit curious about the details. I'm currently NED (No Evidence of Disease), which is amazing, but the treatment back then was a proper slog...
With two more zaps to go I am struggling to drink enough let alone eat. I am left with only my front eight teeth at the top and bottom so all enjoyment of eating has gone. Since my second and last chemo the thought of eating is stressing me out. I will...
Hi all, I’ll try and keep this short. I’ve had my 2nd round of 6 weekly Cisplatin treatments today that are running alongside my 30 sessions of radiotherapy for T2 base of tongue HPV positive that was found after I noticed a lump on my neck. I appreciate...
Hi everyone, Ive just come back to the forum after a bit of time away. I am a friend and the main carer of someone living with Terminal Cancer of the base of the tongue with lymph node involvement, alongside Dementia and other co morbidities. My friend...
Hi. So last week I had my 3rd weekly cisplatin. For the last 3 days I’ve been bed bound and not eating or drinking much. I tried to use my feeding rig but the reflux made me violently sick which has really aggravated my throat. im feeling a little better...
Worried it will spread even more before I start treatment in two weeks
I had my peg inserted a couple of days ago and I totally underestimated the pain it would cause, having terrible spasms sone that prolong and take my breath away. I’ve had to get pain patch from GP. Has anyone else experienced this and any tips or when...
Newly diagnosed start treatment in two weeks
Scanxiety is something we may suffer from at various times pre, during and post treatment....Maggie's has an interesting article on how to deal with it...click on the link....... Tips for managing 'scanxiety' | Maggie's
so iam still in remission and so happy, i do have loss of voice but its due to odeama in my throat a side affect from radiotherapy but iam still here and still no sign of disease
