20 months in remission

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so iam still in remission and so happy, i do have loss of voice but its due to odeama in my throat a side affect from radiotherapy but iam still here and still no sign of disease Grinning

  • That’s great news and so encouraging for others 

    Have you had any physio suggested for the oedema? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • i do have a speech and language nurse and she comes to see me but all the excerises she gives i do but i cant make the sounds you have to make so its not helping i only have 1 vocal chord and 1 false chord and the false chord they said yesterday after scoping me is very sluggish and very unlikely to iimprove, how are you doing x

  • Ah… you sound as if you are doing all you can. Hugs

    Im ok… getting old Cry but in view of what happened to me its a privilege 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • thats how i feel iam now 58 and lost my close life long friend a yr ago to cancer and another friend just couple of days ago it makes me feel guilty of being happy iam still ok when we are about to say goodbye today to someone younger than me and such a lovely soul i feel bad being happy iam ok st the moment iam pleased to hear u r still doing well x

  •  Brilliant news ThumbsupKissing heartGrinso happy for you!

  • makes me feel guilty of being happy iam still ok when we are about to say goodbye today to someone younger than me and such a lovely soul i feel bad being happy

    They wouldn't want you to feel that way...We have been giveen a second chance so we shouldn't waste it on guilt and regret. More hugs 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hey - can totally relate to how you feel however, it’s important to compartmentalise things and try to provide your situation (and everyone else’s) with perspective. I’ve had a rough ride and every time I see friends and they moan about how rubbish things are for them or if they’ve had flu they quickly say “but it’s nothing like what you’re going through!”. Hearing that is tough because everyone’s situation is personal to them and what to you and me might seem ‘normal’ could be catastrophic for someone else based on their individual circumstances.

    Feeling happy about where you’ve got to when others have been less fortunate is part and parcel of the cruel narrative that cancer delivers. Enjoy where you are, be happy with the progress you’ve made and yes, think about those close to you that have been less fortunate but try to retain perspective.

    These forums are a great place to share thoughts, feelings and experiences.

    Reevsey
  • you are so right but now and then especially days like today when its a yr ago today i lost 1 of my oldest friends to the big c it certainly does make me feel lucky but on the flip side i also get what iam told is survivors guilt but as i say on the flip side makes me realise how lucky iam to survived it 3 times now x

  • Hey Dpanky - survivors guilt is only natural and unfortunately for many of us it becomes part of the cancer narrative.

    I exist day to day, things aren’t easy for anyone after cancer but it’s what you do and how you do it that defines you - not the illness.

    Keep going, you’re obviously more stronger physically and emotionally than you think!

    Reevsey