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Hi everyone, I wanted to share my experience in case it helps anyone facing head and neck cancer or proton beam therapy. Over about 18 months, I had persistent tearing and swelling around my left eye. It was treated several times as dacryocystitis, and...
Hi, Just wanted to share a little positivity for anyone currently struggling with treatment side effects or that has just finished treatment. Im currently just over 2 months post treatment (6 weeks of radiotherapy and chemo base of tongue and lymph...
Hi All, I finished 6 weeks of radiotherapy way back at the beginning of March, I had a feeding tube until Mid April. I began to eat small amounts of food, then gradually building up to my normal portions as of today in October. My PET scan came back clear...
T4 - base of tongue Last radio session tomorrow - which I think I'm going to cancel. The damage caused by the radio to my tongue just seems to be mounting each day. Today, I could barely drink and was unable to eat because of something digging into...
Well ive been today for my treatment planning mask done,and guess what it wasnt two masks after all I start 3weeks treatment on 20th October but in the meantime weve booked a quick holiday pre-treatmenr treatment..
Hi all. 33 sessions of radiotherapy for thyroid cancer finished in June. I am 42. Before starting I had hospital dental appointment to check if any of my teeth needs removing, etc. Everything was fine, no removals. I was given advice on dental...
Hi, I’m new here. My husband has just been diagnosed with the above. We are devastated and very frightened. We never thought we’d be here again after he had prostate cancer 8 years ago, which was successfully treated. we are currently waiting to see...
There are a couple of useful webinars from Oracle Head and Neck Cancer coming up. The next one this month is by Prof Kevin Harrington on immunotherapy and next month’s is about diet and eating after treatment. Our own PFJTHS is sharing his experience...
Had my post treatment MRI last saturday . Have Oncologist appointment 3rd November . Feels like a long time to wait . Was told no news is good news by ENT doctor . Sorry but this feels a long wait and now every time phone goes i jump . I'm kind of wanting...
Hi, I am looking for information and support from anyone who has had the jaw bone replacement surgery which I am currently waiting to have. I am resigned to the fact that it needs to be done as all other treatments have failed and I am in constant pain...
