T4 - base of tongue
Last radio session tomorrow - which I think I'm going to cancel. The damage caused by the radio to my tongue just seems to be mounting each day. Today, I could barely drink and was unable to eat because of something digging into my throat now when I swallow. (even the Nutrisip drinks). Feels like I've got half a peanut shell stick somewhere. This has happened a few times, but not for so long. - has been getting worse as the radio has progressed.
Oncologist says it's "normal" - everyone feels something like this. Is this correct?? Another.consultant has had a look with an endoscope - but only at the surgical site I think - and couldn't see anything
I suspect I'll have to ask for a tube tomorrow, but apparently it can't be done at short notice, and once in, it's there for 8 weeks. (I suspect this is a nasal tube into the form not the stomach)?.
Anyone got any experience of these issues?
Spot on. The radiation annihilates the sensitive tissue in your throat. That’s why so many trusts put in a feeding tube before you start or a nasogastric tube when you need it. I had one in week 4 and it was in once for eight weeks. It saved my life.
The rotten news is that RT continues to have an effect and symptoms ramp up for two to three weeks after treatment ends. So there is no point in missing your last session. Get that NG in. It sounds like you really need it.
What pain killers are you taking?
