Finished Chemoradio (30 RadioT +4 cisplatin) on June 2nd this year...spent 12 days in Ninewells Dundee afterwards due to weight loss control....times were challenging...but small steps forward were being made...PEG tube feeding kept my weight stable....
Hi all just an update I’ve had three ops, now on second day of radiotherapy hoping I wint be too uncomfortable with the side effects. My face is slowly going from swollen to wonky but I think a few months will sort it all, tbh I don’t think I’ll ever...
Hi again my husband is three weeks post treatment and still feeling so very tired...Im wondering how long others were tired for? Thanks x
Well, it’s three years today since I got the phone call confirming they’d found SCC cells in the annoying lump in my neck, ‘Probably tonsillar in origin’. In the three months following the full diagnosis of T1, N1, M0 I underwent TORS to remove the offending...
Hi all My surgery took place last Tuesday I had my uvula and right tonsil removed along with all of my soft palate there is now a really big hole in my throat and it’s so much bigger than I thought it would be, I have a surgical obturator which is very...
Hi , Is there anybody here who has a PEG and needs to take Levothyroxine daily ? I've spoken to two GPs at my practice neither were helpful or interested to be honest.My PEG is being done in a week and I don't know if I'll have to order liquid Levothyroxine...
So shock news from consultant yesterday that the cancer is back, neck "cystitis" is a tumour and surgery not an option. Palliative care only and maybe immunotherapy if PDR test works out to buy me some time. Otherwise it's "weeks/months" as this aggressive...
Hi. Just thought I’d share my latest find for sugar free dry mouth/horrible mouth taste relief. Love to all x
Ideas please as to what I can put in my blended food and smoothies to give me more protein and calories. I have now lost 2 stone and really need to know how to put some back on. Thank you Lillian
Hi Everyone I wish everyone the best while they are going through treatment and afterwards with managing the side effects. You are all so brave. Thanks to this fantastic forum that has helped me so much through my cancer journey especially Dani, Hazel...
