Tiredness

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Hi again

my husband is three weeks post treatment and still feeling so very tired...Im wondering how long others were tired for? Thanks x

  • Hi Chicadee

    Six months for me. I also had bouts of radiation fatigue that would come along out of nowhere and poleaxe me. 
    Three weeks is really early. The radiation has only just left his body. It’s a long slow recovery with a lot of bumps in the road. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Dani im assuming you were SO tired for ALL of that time?

  • No

    Everything was an effort for 12 weeks 

    It gradually got better. 
    We are all different. There is no right or wrong in how you feel. My CNS told me to get moving and she was right. The more gentle exercise you do the easier it becomes. 
    The cancer took a year out of my life 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Sorry that should read 'I assume you werent SO tired ALL of that time?' Fingers crossedFingers crossedFingers crossedFingers crossed

  • He’ll get there. It’s the consultants’ fault. So many people are told they will feel better from two weeks. It’s not true. Radiotherapy is very very toxic. It messes with your whole body physiology as well as the cancer it targets. The base of your brain gets hit too which adds to the tiredness 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Thanks For your reply

  • Thats exactly what we were told, two weeks! What a shock to find out thats not the case! It feels interminable for him!

  • It’s not I promise. Let him read this thread. Once he realises that what he’s feeling is normal it will be easier. 

    feels interminable

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • PS. My consultant was honest with me. He told me that the treatment would be awful but it would work, The cancer would take a year out of my life but I would get better. He was spot on

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Radiation  fatigue for me lasted well into a year. To start with inwas  having 3 sleeps during the day it’s really early days for your husband. Radiation fatigue is a tiredness like nothing else yiu can’t fight it I learned to listen to my body if I needed sleep I slept. That’s nit to say as time  wore on I was still able to ride my bike go for walk but when the wave of tiredness hit me I didn’t fight it. I became the queen if the 20 min Power Nap. Like I said 3 weeks is still early. I also made sure I was get;2500 calories every day including 85 g of protein and 2-3 litres if water every day.  I didn’t start to put weight back in until  around 15 months post treatment. Our treatments curative but it’s brutal in the way it attacks our bodies.Imfiumd light exercise helped I started walk8ng round the garden then each day a little further by week 8 I did 8 km on my bike a milestone we were in Spain for hubbys 60 th it was hard but he wasn’t going to be 60 again I went with oncologist blessing  

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help