Hi there I reached the end of my six weeks of treatment on Friday and found myself admitted to hospital for the weekend that evening. I've been struggling with sickness, secretions and no swallow, and I spiked a random fever. Hope I can get home tomorrow...
My husband started treatment on Thursday. He is also having red light therapy 3 times a week (I think it is) after radiotherapy. Cisplatin is given over an hour but the appt is 2 hrs as fluids are also given. He has steroids for a couple of days after...
Hi all just looking for some advise , the right hand side of my tongue is feeling a little sore and I can see what looks like small white patches plus my tongue is quite yellow and everything tastes coated with whatever I have just eaten or drank… also...
Hi everyone Thanks for all the words of encouragement last week when I was struggling with the enormity of finishing treatment. I stayed in hospital for four nights then managed to get home with a plan to get feeds sorted via peg and see how it went...
Hi guys The scans show nothing of concern The ENT consultant does not want to see me until September! still lots of pain in neck at scar sight, swelling and restricted movement eating not great, bread and chicken impossible Nerve pain bad ...
t4 n2 m0p16 SCC base of tongue finished 30 radio and 5 chemo on 12th Sep 2025 then the horrible after effects and then to top it all Osteomylitis in Jaw,on June 2nd 2026 got an operation ,took out my bottom teeth and cleared out my gums treatment up...
Hi all, Is this weather making anyone else's throat and mouth dryer and more sore than the new normal ? Mine seems to be real bad at moment my hayfever isn't helping either. I drink fluids etc .any recommendations? Thanks Mark
Hi all. Got my results today from my pet ct scan. Unfortunately not got a clear one. There is still uptake as they called it from the dye ,showing at the back of the tongue . My cancer was diagnosed a t4 tonsil and tongue/ soft palate originally. Today...
Hi again guys 20 months post treatment for tonsilar SCC that had spread to the lymph nodes in my neck, both right side had chemo then radiotherapy then a salvage neck dissection in September 2025 still got a lot of pain and stiffness at the scar...
Hi all just a quick update .. had my scan results and meeting with my specialist on Monday … and got the all clear on my Petscan and MRI , so relieved to be able to to report this It was so odd sitting outside the door waiting to go in to find out your...
