t4 n2 m0p16 SCC base of tongue
finished 30 radio and 5 chemo on 12th Sep 2025 then the horrible after effects and then to top it all Osteomylitis in Jaw,on June 2nd 2026 got an operation ,took out my bottom teeth and cleared out my gums treatment up to a year of very high doses of Amoxicillan i have been told treatment could take up to a year groan ,I wonder when it ends...
That's not good news...so sorry
Can you ask about a treatment for ORN called PENTO?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Dani
I am now on my 7th week of Amoxicillan 3000mg per day ,the consultant has really not mentioned any other treatment other than Amoxi as being the one that will be best suited to destroy the bacteria but they might look into administering it intravenously via a pic line.Meantime thankfully the swelling has gone down but still not gone i also still have a numb tight feeling on my bottom lip and chin which almost goes into spasm if im talking too long or laughing I cannot get false bottom teeth for any where up to a year either which there is nothing i can do anything about.
Struth...I misread your post. Osteomyelitis I mistook for ORN. Please ignore what I suggested. Look after your gut and bladder with prolonged antibiotics. I had six weeks metronidazole when `I had an implant and felt pretty sorry for myself till I realised all my useful bacteria were being clobbered
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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