Post treatment update - 1 week on

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Hi everyone 

Thanks for all the words of encouragement last week when I was struggling with the enormity of finishing treatment. 

I stayed in hospital for four nights then managed to get home with a plan to get feeds sorted via peg and see how it went. 

Predictably up and down, but we seem to be heading largely in the right direction fingers crossed. Side effects - esp secretions - are up and down. At worst it's like a webby string cascading out of my mouth! Mind you I'm watching the Spiderman films as part of my TV diet so that might not be helping!

I've tried to stop worrying about what I can't do. Mainly I was focussed on eating and drinking so today I tried to distract myself by sipping on a drink whilst watching tv, with good success. Only a few sips but progress is progress.

If anyone has any other tips or tricks to introduce more food and drink without setbacks I'd be very grateful. 

Oh and I'm doing swallow exercises - or at least trying to get them into my daily routine. They aren't easy! 

Thank you again 

Polly 

  • Hi Polly sounds like you're doing well. I too found watchiingbtv helped immensely in early days as a distraction. Once I started to eat I found 6 small plates of food easier to manage than 3 square meals a day. They were not full meals breakfast a small bowl of runny wet weetabix could take me 45 mins then around 11 an ensure stood uo at kitchen sink looking out into garden again distraction. Lunch poached egg eventually on toast well buttered cheap white bread. Toast was easier than bread. May be a trifle mI’d afternoon  with another ensure etc. I aimed for 2500 calories a day to start with inwas having 6 ensures to get 1800 calories then eventually found what worked for me. Make sure you drink 2-3 litres of water a day. Some days yiu might feel like 2 steps back and 1 forward. Recovery can be a marathon not a sprint take it at yiur own pace there’s no right or wrong way 

    re the mucus as gross as it sounds I found pulling out with fingers easier and putting it into tissues.  I also had a humidifier in bedroom and a nebuliser which I used 5-6 times a day. Recovery’s a  full  time  job !! But you’ll get there. The mucus will go often replaced by dry mouth which is another thing that many of us have for a good while but again manageable. 
    hugs Hazel,x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  7years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • I found that I could tolerate Alcohol Free Guinness pretty early on in recovery...contained a few calories which helped...Full fat milk also helped...I am not really a milk drinker but my CNS recommended that I drank it regularly.

    Michael