been a while since I posted but need some advise please. My last treatment was 4th October 2024 and now having 8 weeks check ups with consultant. All appears to be going in the right direction so why now is my anxiety going through the roof, I am already...
Hi all, me AGAIN. So mum was really staring to improve, the morpheme patch has worked a treat and she had slowly started to introduce small amounts of food (weetabix, pot noodles ??? And a biscuit dunked in tea etc) 6 wk check up went well and PET scan...
Hi everyone. I have now had the peg/reg fitted (three days ago). The surgery is settling down. I had a great Consultant who did the procedure and had about 8 staff in the room. The procedure itself was mainly fine except for the tube being fed into my...
Hi all. Just thought I'd give an update and ask for reassurance about taking the leap to oramorph. Check my profile for more info. T4 N1 M0 Hpv+ I'm nearly 4 weeks in and I'm now on max codeine & pain managed well (apart from those pesky tongue...
Hi everyone , Just want a bit of reassurance really. I had a couple of packets of crisps last night ,bugles Bacon flavour and some lentil crisps which were a strong BBQ flavour , but since I ate them my tongue seems a tad sensitive /sore in several...
well no quite as I expected but went in to get the results of my PET and MRI scan today. They now dont think the cancer is in my throat as the PET scan showed a mass on my rectum. Now being referred urgently to the Colelrectal team , I guess its a step...
Hi I e had fantastic news today at my check up 3 weeks post op. My lymph nodes are clear and I don’t need any further treatment so no radiotherapy or chemotherapy. I must say I was very apprehensive at the thought of either. I had margins of 4.5 mm (...
I saw a specialist dentist today at a Maxillofacial Department.The dental surgeon is going to remove just one of my teeth before the feeding tube goes in on the 13th and my radiotherapy begins on the 20th. My curve ball from this is that I was told during...
I had an appointment at the hospital this morning to have 2 teeth extracted and to remove a dental abscess. I was also due for a bone biopsy to determine the extent of my ORN. I saw 2 senior MaxFac consultants who were both of the opinion that the swelling...
Hurray I have made it finally to having 6 month checkups with my surgeon after 3 years of 3 monthly checkups. I might even make the 5 year mark this time and be discharged. In 2013 when I had my first jaw cancer I made it to 2019 and was just about to...
