Hi all.
Just thought I'd give an update and ask for reassurance about taking the leap to oramorph.
Check my profile for more info. T4 N1 M0 Hpv+
I'm nearly 4 weeks in and
I'm now on max codeine & pain managed well (apart from those pesky tongue ulcers). I dare not miss a dose.
oramorph the next step.
It feels a bit scary. will I be a space cadet for the next few weeks?
thanks
Becky
ps. last RT is on Halloween so will I get to take m mask home for that?!
oramorph the next step.
It feels a bit scary. will I be a space cadet for the next few weeks?
Don't be scared. Morphine does a good job of masking background pain to keep you comfortable. I was on long acting morphine twice a day and oramorph every four hours. Yes I dozed a little more but I was never "out of it" and still managed a turn round one of our fields with the dog. The two weeks after treatment end I did sleep a lot but that was more because I was exhausted.
When you have been on opiates for a while you have to taper slowly or you get withdrawal symptoms. Not because you are addicted but because your body has built up a tolerance for the drug. Both codeine and morphine are opiates.
I left my mask behind but lots of us do keep it
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Oramorph is somewhat "different" to other opioids like oxycodone. Generally it is a much more gentle drug and can sometimes be taken in quite large doses on advice from your clinical team.
I was on Oxycodone as morphine does not metabolise well in my body. In the end I was on around the equivalent of 60+ mg of Oral Morphine per day between patches and Oxycodone. Even then I did not feel "out of it", but I did want to sleep all day - the last couple of weeks of, and the first few weeks after, treatment take it out of you and your body needs to rest.
What I did not do was drive once I went on to an opioid drug. That was my choice even though I felt I could at some stages.
Pain relief is most important in the healing process. Please don't be scared to take advantage of what is on offer - and don't be scared to say if it is no longer working and you need something stronger.
Personally I did find paracetamol a really effective drug if I took it around 30 minutes before I wanted to swallow as I started to regain my ability to eat.
thank you.
I haven't been offered patches.
is that something I should ask about? '
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