Hi Guys, Hope everyone is well and enjoying some sign of spring being around the corner. It's been a while since finishing rt/chemo (2.5 months) and wondering whom else has battled with: "Fizzy tongue" - my original tongue part gets quite sensitive...
Hi Last sunday i was just pottering, catching up on small jobs, nothing strenuous when i noticed my mouth started bleeding. By the time i go to the bathroom it was pouring, i ended up calling 999, it carried on like this for an hr and a half. I was...
Hi all I’m now 13 treatments in to my 30 course radiotherapy and am having to use the feeding tube as my mouth is so sore. I’m bolus feeding this weekend but need to move to the pump or I’ll never fit feeding in around all my hospital appointments....
I am 5 months post treatment, 7 weeks daily.radiation and three cycles of Cisplatin. First two months after radiation ended were when I suffered the worse side effects. I had terrible sores on my tongue which made eating and drinking anything painful...
Hello again, Another question - sorry - my husband is due to start his radiotherapy/chemo treatment in April - he will have the planning apps, dentist, etc and they said this should take about 4 weeks, then the treatment for 6 weeks. We had a holiday...
Hi everyone, hope you are all doing OK x Well we went for the follow up app today after hubby had his op 3 weeks ago. The news wasn't great!! He had 35 lymph nodes taken out and some contained squamous cell cancer and had started to spread out....
After being told that chemo radiation has not been successful for my husband, he had his first immunotherapy treatment of nivolumab 3 weeks ago. For the first 10 days he had some mild d iarrhoea, but otherwise he was okay, and much better than he was...
I had surgery for ACC of the left submandibular gland in July 2021. The surgery was followed by 33 sessions of radiotherapy. In December 2022 I had a PET ST scan followed by a head and Neck MRI. These were ll repeated 2 weeks ago together with biopsies...
Hello - thought I'd drop in with a quick update on all things recovery, taste, appetite... I think it's helpful for anyone newly diagnosed to see people coming out the other end of treatment and getting on with life - it certainly was for me! Eating...
Hi There folk. Just a quick one please. I have tried to reduce my 10 mg x 2 daily oramorph and 10mg x 2 pregabalin but have noted increased pain when eating. My throat especially where the bulk of the radiotherapy was feels very scratchy and stingy...
