After being told that chemo radiation has not been successful for my husband, he had his first immunotherapy treatment of nivolumab 3 weeks ago. For the first 10 days he had some mild diarrhoea, but otherwise he was okay, and much better than he was after chemo. He’s had a couple of episodes of nausea, but nothing more than he was getting prior to the immunotherapy. However, there is new swelling on the left side of his face and tongue, and the pain in his neck and jawline has intensified, which is possibly nerve pain. Has anyone else experienced swelling at the site of the cancer after treatment? I’m unsure if it could be related to the treatment or cancer progression? We are due to see the consultant tomorrow so hopefully he can shed some light.
I can’t help I’m afraid and it would be wrong to speculate but just wanted to wish you well. Good luck for tomorrow
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Fingers x for tomorrow jyst write everything down as we all get flustered at appointments.
hugs Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Yes, I have a list of questions and things to discuss. Thank you ️
Hi, Sorry to hear about your husband. I can’t answer your question but can tell you are experience to date as my husband is on same treatment I think. My husband has stage 4 cancer and has just had his 9 treatment, so far so good, 4 out of 5 tumours have gone and no new ones. My husband has been very lucky as the only side affect has been low platelets. Saying that we have been to,d that many people get really bad side affects but still get very good results from the treatment. My husband did not have chemotherapy as he was told it had spreed to far, at the time we just thought that was it but they said he qualified for immunotherapy, thank god he did. This was last September.
we have heard so many good things about immunotherapy so I hope it is good for you.
take care
Oh wow, that is a fantastic result and I am very happy for you. Can I ask if you noticed any improvement in him as he was having the treatment, just from day to day, perhaps reduction in pain, and if so, how soon did the improvements begin? Was it soon after the first treatment or later? My husband is having his 2nd infusion next Wednesday. They have told us his biopsy markers are 40, which is a good indicator that the immunotherapy could work. Apparently if it is between 0 to 20 it’s not likely to work. He hasn’t had a serious side effects. He just feels a little sick occasionally and a sight bit of diahorrea for the first week after infusion, but nothing to worry about. I’ll let you know how we get on over the coming weeks/ months. Thank you for helping me maintain my positivity. Good luck to your husband too x
I can’t answer your question but can tell you are experience to date as my husband is on same treatment I think. My husband has stage 4 cancer and has just had his 9 treatment, so far so good, 4 out of 5 tumours have gone and no new ones.
Thank you so much for this update. It means a huge amount to those who have failed treatment one way or another
I am so pleased for you both
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
It was a week after the first treatment he seemed to cough more so we went to hospital and they did a scan, we were shocked as just after one week the tumours had already shrunk a bit, we were shocked. Within a few weeks he stopped wheezing, I think that’s because the large tumour on his nymph node in his chest had reduced in size. The doctors were please but they said normally it’s the people that have the side effects that seem to do better. My husband has had no other side affects, perhaps a bit tired but that may be age lol
i hope it works for you but be forever optimistic.
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