Hi all
I’m now 13 treatments in to my 30 course radiotherapy and am having to use the feeding tube as my mouth is so sore.
I’m bolus feeding this weekend but need to move to the pump or I’ll never fit feeding in around all my hospital appointments.
my feeding instructions state I must be at a 45 degree angle all night. Did anyone else have this and how did you achieve it? We have an ordinary king size bed and don’t really want to buy an adjustable bed. Notice one company offering a mattress wedge which seems ok but is £160 so I wanted opinions before spending the money (typical Yorkshireman I’m afraid)
many thanks
Hi DaddyBear I fed overnight through my RIG, and I more or less sat up in bed, I had a large V shaped pillow plus other pillows, to ensure I remained in that position, it's surprising how quickly you get used to it. Like Blod says no need for anything fancy.
Regards Ray.
I propped myself up and surrounded myself by pillows in the spare room. But by morning I had slid down anyway. I had a nasogastric tube so I think it was more crucial to stay upright. I did aspirate food twice. Masses if coughing and a bit of chest pain for a couple of hours then I was fine.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
My partner made me a very rough sloping wooden frame to go behind pillows and that worked well while on overnight tube feeds. Sleeping in a half-sitting position was easier than I expected - I was so tired from the treatment. Sending love, Catriona
September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Oct 2024 nearly 2 years all clear. See my profile for longer story
PS we don't need it now & would be glad to pass it one to anyone who can collect it - we're in SE London
September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Oct 2024 nearly 2 years all clear. See my profile for longer story
Started pump feeding just yesterday. I actually bought an electric bed before because I have throat cancer and was terrified of choking. Last night I kept slipping down and at times through the night I felt like video drunk 50 gallons of water! Extremely uncomfortable,, awake most of the night, very tired today. I'm going to try elevate the hedvvhigher and use pillows. Early days still awaiting results and appointment with ENT, MRI done on the 25th February, can't say I'm impressed. I've lost over 3 stone Imneed sorting!!!! Oncology App next week see what they have to say. Good luck.
Hi, i started off with NG feeding overnight and yes i had to sit upright. Sleep wasnt great as i was worried i would aspirate the feed.
i spoke with dietitian and started to have my feed through the day, using a portable rucksack to carry it wherever i went and pausing it for radiotherapy. I also used to speed up the rate to get it in quicker (after discussing with the dietitian of course). Sleeping was much better after i swiched to day feeding.
Elaine
Hi daddybear I had the same problem as you and many others but i was fortunate enough to already have an adjustable bed for the reason I sleep mostly in a very high position. Even now the side effects from the radiotherapy still make my sleeping difficult ( dry sticky mouth. very loud grunty snore) and i was always having problems with a thick mucus which hampered my breathing, so to answer you concerns about the bed !00% yes go for it, my wife even got herself one as they are so comfy,,,,,,Good luck with whatever decision you choose
Loch
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