Hello - 7 months post treatment and doing well

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Hello - thought I'd drop in with a quick update on all things recovery, taste, appetite... I think it's helpful for anyone newly diagnosed to see people coming out the other end of treatment and getting on with life - it certainly was for me!

Eating - everything! I need water to wash it down but I never shy away from trying anything. Prefer fish, or lamb /belly pork. Don't eat much bread now (used to love it) but still love a croissant. I've eaten out a lot and always manage to find something on the menu that my taste buds prefer!

Taste - I can taste chocolate for 3 bites then taste disappears - which is good as I used to be a chocoholic! A box of chocolates or a bar now lasts me much longer! Weirdly, I prefer desserts that I didn't used to like before (trifle, cheesecake, Portuguese egg custards are now yum!). I prefer savoury to sweet things. I still can't really taste wine... apart from Champagne ... So I just drink that... what a shame LOL! 

Dry mouth persists but very manageable, much like everyone else I suppose. Still drink plenty of water, chew gum, a Xylimelt at night. 

Winter - everyone had some sort of virus or flu this winter and happily I've managed to escape it (loads of vitamins/ supplements/ fruit & veg etc). I do feel like I have a mild cold on and off... like phlegmy throat, blowing nose, dry throat etc. But barely noticeable compared to those dark days of treatment/recovery. Central heating & winter months certainly don't help, but we're nearly entering Spring!

Feeling good and building back to full contracted hours by April. Managing fatigue and listening to my body!

Looking forward to hubby's birthday weekend early May - massive food extravaganza 6-course tasting menu with a Michelin * chef and white water rafting in North Wales.

Booked a holiday to Ibiza (end of May) and can't wait Smiley And already planning a couple more breaks this year!

I went to a rock night last week and was jumping around to ACDC about halfway in - never too old! So for anyone just embarking on treatment or coming through recovery, it may feel like ground hog day and hopeless at times; but it really does pass and good times will return. It makes me appreciate things so much more now and I will continue to grab life with both hands!

Helen xxx

  • Hi Helen

    What an uplifting post. So glad everything is going so well for you. You certainly are grabbing life with both hands good for you. The cancer journey does make you appreciate even the small things such as a sunny day and definitely everything life has to offer.

    Funny isn't it how your taste buds can change and you sometimes like different things from what you liked pre radiotherapy. Mine changed too and I now eat things I wouldn't have thought of before.

    Your hubby's birthday sounds great, enjoy the menu and enjoy your holiday to Ibiza.

    Warm wishes to you

    Lyn

    Sophie66

  • Hello Helen....how lovely to hear from you and that you are doing so well. It really is so encouraging for all the new folk joining the community with treatment yet to come. There is a good life at the end of it...just a little different.

    I too can eat just about everything and even wine is back on the table, though my appetite for it is largely non existent. I could enjoy a good ale really early on and I'm OK with bread. Keep going and have a fab time rafting...The thought of that fills me with horror, mind

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Helen a really great post, it's good to hear you are doing so well. Posts like this are really inspiring, for those who are just starting out, having treatment, or on their recovery, it does help to read posts like this. Have a great holiday in May, and any others you have planned.

    Regards Ray.

  • Hi Helen. Brilliant post to let every one you’re know on the road to recovery. Remember you’re very earlyFirst posts . we  will get there in the end. I’m a firm believer in one life life it. Xyimelts water snd chewing gum snd you’re off. Enjoy hubby’s birthday and Ibiza. We’re living our life’s just over in Spain up to 50 km bike rides daily not bad for an o a p got my pension in February as well. 
    keep in touch 

    Such an uplifting post fir others just starting out or in the process. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Helen That is great news  that you are doing so well , Well Jell seeing ACDC. When you read posts like this it is really encouraging which is great , All the Best Regards Minmax 

  • Posts like this are really inspiring, for those who are just starting out, having treatment, or on their recovery,

      
    They are Especially posted by folk in early recovery. Us old farts 4/5+ years down the line seem so far on the horizon in the early days. Five years seemed unreachable when I was just coming out of treatment. The idea that you can be well within the year is so much more crucial 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Ha! I wish I had seen the real AC/DC but alas it was a tribute rock night called The Classic Rock Show; which I highly recommend if they're touring near you! All the musicians were session musicians, really superb, they'd played with many the the greats and been on their albums. And the singers were incredible! They covered a lot of my faves - Led Zeppelin, Floyd, ACDC, Queen, Fleetwood Mac... SmileyDancerGuitar

  • Hi Helen  What a positive inspiring post!! I am 14 months post treatment. I can relate to all you mention, lack of taste was the worst but now back about 95% and like you and Lyn it has changed. Bread now has to be toasted and lots of honey on it. Boiled potatoes I used to enjoy now they do nothing for me but I enjoy spicy wedges (in fact anything spicy) I didn't have a drink for over 12 months It just didn't taste right. Now I have a Guinness while preparing my evening meal and enjoy a glass of wine and a whiskey. Still very little saliva and dry mouth which I can live with.

    i thought I was the only one whose taste had changed. I am feeling a lot better and the light at the end of the tunnel is shining so much brighter now. 

    Even now I get encouragement from your post and I hope you continue to be well

    Ivan

  • What a lovely post. Great to hear you're doing well. Enjoy your upcoming celebrations and vacations :)

  • So pleased to hear it’s all going well Helen!  This will help to inspire others following on.