Trivial yet annoying post treatment battles....

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Hi Guys,

Hope everyone is well and enjoying some sign of spring being around the corner. It's been a while since finishing rt/chemo (2.5 months) and wondering whom else has battled with:

"Fizzy tongue" - my original tongue part gets quite sensitive to pretty much anything really and seems to fizz / be inflamed - I can eat / drink past it and not really pain just wondering if normal?
"Taste" - remains rubbish - I tried a sip of beer at the weekend, OMG it tasted like dog poo!! That aside I still have a really off taste - quite hard going at times...
"Dema" - remains sore around neck and had some laser light treatment, still makes sleeping a massive chore
Some of the above has an effect on food but regained some chew and nibble and trying to keep the calories up, hard going!

I am awaiting scan date and then some sort of assessment of effectiveness and psychologically I wonder if that is playing its part.

Beesuit over 3 years ago

It’s still early. My taste was all over the place for months.
Fizzy tongue? Yes burning mouth the clinicians call it. It will probably disappear slowly. I still get it now and then 4 years on.

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

RadioactiveRaz over 3 years ago

HunAs Daninsays its burning tongue I still get it with certain foods, for me anything fermented including cheese, vinegar acid and citrus. Even niw al most 5 years I get it.
lI took attitude food is fuel and git very little enjoyment for a good year itbwas eat to live not live to eat. It does improve

Hazel x

good luck with scan

Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo 3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life.
No questions too daft to ask.

I’m also an ambassador for https://oraclehnc.org.uk/

A leading head and neck cancer charity.

This is a link to a webinar i did with Oracle explaining the process of diagnosis.

https://oraclehnc.org.uk/oracle-launches-new-webinar-series-to-support-head-neck-cancer-patients

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Trivial yet annoying post treatment battles....