I’m so angry and desperate

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Goal posts change daily for me

last Thursday I was told cancer in throat was advanced and would cancel radiotherapy as airway would be compromised and debulking and a possible trachi

told it had to be this week normally a friday

I would be called on Monday to do vonsent

missed call

calked back 

told I would get a call yesterday Evening didnt

on phone to doctors when hospital called

called back no answer

e nailed

told a telephone app will be Thursday and I time will be e sent via email

nothing

sent e mail requesting a call

nothing

radiology called to say scans have been urgently requested within 5 days yet I was told these would not be done until after op

asked again for a call

nothing

my health is at severe risk 

I’m deteriorating by the day

  • Not yet

    just waiting on some transport as I can’t drive atm

  • Taxi. Let us know what happens and hugs. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • How are you going now? Hope you got to A&E and are getting sorted out ASAP. xx

  • Dear Spencerbear,

    So sorry to hear about your situation.

    I have currently been supporting my mother through her cancer treatment for the last 10 months.

    It has been a very tough journey for us both. Unfortunately none of her treatments have worked and we have run out of options as she refused the laryngectomy and the other treatments were mainly palliative.

    I think it helps to have someone supporting you with all the appointments, calls etc as it a nightmare to deal with on your own, especially when you are feeling so tired and ill.

    I hope you get the correct treatment and things get better for you.