Goal posts change daily for me
last Thursday I was told cancer in throat was advanced and would cancel radiotherapy as airway would be compromised and debulking and a possible trachi
told it had to be this week normally a friday
I would be called on Monday to do vonsent
missed call
calked back
told I would get a call yesterday Evening didnt
on phone to doctors when hospital called
called back no answer
e nailed
told a telephone app will be Thursday and I time will be e sent via email
nothing
sent e mail requesting a call
nothing
radiology called to say scans have been urgently requested within 5 days yet I was told these would not be done until after op
asked again for a call
nothing
my health is at severe risk
I’m deteriorating by the day
Not yet
just waiting on some transport as I can’t drive atm
Taxi. Let us know what happens and hugs.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
How are you going now? Hope you got to A&E and are getting sorted out ASAP. xx
Dear Spencerbear,
So sorry to hear about your situation.
I have currently been supporting my mother through her cancer treatment for the last 10 months.
It has been a very tough journey for us both. Unfortunately none of her treatments have worked and we have run out of options as she refused the laryngectomy and the other treatments were mainly palliative.
I think it helps to have someone supporting you with all the appointments, calls etc as it a nightmare to deal with on your own, especially when you are feeling so tired and ill.
I hope you get the correct treatment and things get better for you.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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