Goal posts change daily for me
last Thursday I was told cancer in throat was advanced and would cancel radiotherapy as airway would be compromised and debulking and a possible trachi
told it had to be this week normally a friday
I would be called on Monday to do vonsent
missed call
calked back
told I would get a call yesterday Evening didnt
on phone to doctors when hospital called
called back no answer
e nailed
told a telephone app will be Thursday and I time will be e sent via email
nothing
sent e mail requesting a call
nothing
radiology called to say scans have been urgently requested within 5 days yet I was told these would not be done until after op
asked again for a call
nothing
my health is at severe risk
I’m deteriorating by the day
Help needed
husband and daughter besides themselves
no
one is responding
what to do nect
this has been going on since 5th dec 2024
Can you get GP to intervene? Or go to the hospital’s A&E and sit there till somebody from oncology sees you ?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Yes take yourself off to A&E but make sure it’s the hospital that’s already treating you
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
As Dani says hospital where you’re being treated they should have 24’hour oncologist on call I know my cancer centre does. Are you on painkillers ?
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Oramorph
ibuprofen
paracetamol
nothing is working atm
not slept for a week
I hope you are posting from A&E.
You sound in an emergency situation
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Oh dear please go to a and e
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
When I asked last week for a prognodis
they said 3/6 months with no treatment
its so scary u feel we are getting there
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