Hi all
Can I ask anyone with tongue and neck cancer, how long after RT does it take for food to taste normal and your appetite return to normal?
I’ve reached my 4th month after RT and managing small amounts of food but have no appetite and nothing tastes nice which is so frustrating
Sue x
Hi Grum This is really common
While you wait for your clinic appointment here is a thread HERE with a link you could look at and I have an easy massage that helped me in my blog linked at the bottom of my post
A search I've done gives you quite a few ;posts about it LYMPHODEMA or LYMPHEDEMA depending on how you spell it
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Jules. I had lymphodema and found a fabulous therapist. I decided to go private as the NHS one didn’t give me much except a compression neck support. There is an excellent video on doing it yourself by the Lymphodema Support Network on youtube. You can also contact them and they will suggest a therapist in your area, which is what I did . I’m a year post now and I hardly have any swelling anymore. .
Hi DesR,
thank you for that- it’s very encouraging. I have an appointment at the Lymphodaema clinic next week and have started some massage myself but will look up on youtube today. Always helps to hear from someone else who has been through the same ordeal. I don’t think you are ever prepared for the aftermath of radiotherapy
Jules
Hi Jules, yep same as you! I had a neck dissection before my RT and one side of my jaw is still quite uncomfortable and sometimes painful also I have about 3 necks now due to lymphoedema which I massage each day. I brought a facial roller (rose quartz beauty set) from TKMaxx that really helps massage the area too.
Sue x
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