They got my pathology results back. Margin is now clear, 38 lymph nodes were removed (only one cancerous one,) Next is 6 weeks radiotherapy 5 days a week, PEG fitted and then possible 5 weeks chemotherapy, scared stiff!
Hazel x
Oh, thanks Mark. They just told me that the PEG would be, "put in your (my) tummy", but didn't elaborate how, and there was so much to take in that I didn't think to ask how it would be inserted in my tummy. I daren't Google it (made that mistake before ) It is what it is as they say. take care.
Hugs
Hazel x
Hi Hazel ,
Yes I had the same from my CNS ,she wouldn't elaborate on the procedure,but said it's best put in prior to treatment . Now I know why ! I get on quite well with my CNS so gave her what for after the fitting !! Still healing at the moment, a week on but a lot better
Mark X
Your oncologist would have worked out how much RT and how much Cisplatin you are getting already. So hopefully you will be told when they do a simulation. Your mask will be made and marked up then they do another CT to delineate the target. Thankfully I had mine one after the other but some folk here have to return for the second.
Some masks are open faced but others not. If yours isn’t I strongly recommend you ask for eyeholes.
Some of us get a positioning tattoo as well.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Dani,
I didn't get the tattoo ,I have too many already!! they just marked the mask I think. I had CT and MRI planning scans with mask on.Mri was the worst as they also wrapped some sort of padded blanket around my head. And it was a 20min scan ,I practiced calm breathing technique which dentician taught me .
Best wishes Mark
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