They got my pathology results back. Margin is now clear, 38 lymph nodes were removed (only one cancerous one,) Next is 6 weeks radiotherapy 5 days a week, PEG fitted and then possible 5 weeks chemotherapy, scared stiff!
Thank you Fab1, yes, everyone on here has been so great, helpful, kind and supportive. I don't think I could have got this far without all the wonderful people on here. Hope you are doing OK.
Hi Hazel hope you slept ok. I'm really good except for these water blisters every day. I had my monthly check up at hospital on Wednesday. They are so pleased with me . They took a photo of my tongue as he was so pleased with the healing. You take care . Sending lots of love xxx
Thanks Jackie, yes, surprisingly I did sleep well. However, I got a phone call this morning to tell me that, yes, I will be having chemo as well as radiotherapy, so I'm a bit down now. So glad to hear you are doing so well, but sorry that you are still getting water blisters. Are they very painful? Do they stop you eating? I hope they stop for you soon. Take care.
Sorry to hear you have to have the RT and CH, but I'm sure it's all for the greater good x
I too start RT and CH on the 28th Oct and I'm also scared ,but being on this forum has helped calm my nerves a lot ,and I'm sure it does you too. It's tough to keep a positive mind set ,but belief in the medical professionals etc is what we must have.
I went for a long walk yesterday to clear my head a bit , called at my local to see some friends ,which was just what I needed.
Think I did too much walking though as my RIG got sore but paracetamol helps that.
Aw Hazel I'm sure you are down hearing that you are having both treatments. But your doctors obviously know what's best for you now. Try not to stress about it although it's easier said than done. I hope you start treatment soon then less time to think about it. The blisters can be very very sore Hazel and some days prevent me from eating at lunchtime but I batter on and make sure I do eat. Just accepting now that's it a full year before I hopefully will feel this is all behind me. Other than the blisters I am flying. Although I have taken an ulcer in my cheek today and I will worry until it goes. This never ends . You will be so much stronger than you think Hazel honestly and you will get through it. Sending lots of hugs . Xxx
Thanks Mark, I have a treadmill that I bought just before my diagnosis and I am doing 30 mins a day and I just put my music on and lose myself (I love music.) It certainly helps. I'm just worried about the side effects of side effects more than anything as they sound so brutal. How do you find the side effects? Are they as bad as they sound? They told me I will probably have a PEG, but what is a RIG?
Thanks Jackie, it's just that I have heard how brutal the side effects can be. Up until today, I have been so positive, but now, just scared. I know it's for the best and will get through it eventually, but it's the journey that worries me. Take care.
I've not started my treatment yet so can't comment on the side effects. I do worry about what is to come ,but seems like each person has different reactions to treatment. But I'm sure what ever comes to us ,the professionals will be able to sort it x
Not sure the difference between PEG and RIG but maybe how they are put in. My RIG was put in using live x-ray then surgeon placed tube in from outside the body. PEG may be fitted internally using endoscopy, but not sure ,someone on here will surely know .
I hade a PEG tube , fed in through the throat to the stomach, incision made in the upper stomach where the PEG tube is anchored...sedated during procedure, sounds iffy but fairly straightforward, for most, overnight stay in hospital for observation, 5 days of moderate pain for me, well controlled by pain meds.
PEG removal was again straightforward ....and painless (almost).
