Hi All,
An update that will hopefully uplift those recently diagnosed, going through treatment, or in recovery! I'm now almost 9 months after my last RT session and 12-months post surgery.
One year ago, we'd cancelled a planned trip for my husband's 50th birthday as I was scheduled for a tonsillectomy ... 1 week later I had my diagnosis of (P16+) cancer in left tonsil. Last summer and much of autumn was a bit pants; focused on treatment, recovery and learning to eat again.
I rebooked the birthday weekend for the weekend just gone (Martin's birthday was coronation day!) and packed in as much as we'd planned pre-cancer diagnosis. Life goes on, recovery is tough, but the human body & spirit are incredible.
Thinking back on the sleepless nights, the pain, the worry, daily trips to the hospital, the not eating, the hard road to recovery .... sometimes I admit I felt a bit defeated and hopeless; not for long though as it's not in my nature to wallow, I'm definitely glass half full and I'm a fighter.
I knew I was going to get through it and feel better. I was right. If you'd told me last August/September (when I was nauseous, spitting phlegm up every 5 mins and in horrible pain) that I'd be white water rafting and eating an eight-course menu I'd have raised an eyebrow or two! But I did it and I enjoyed every moment and mouthful
If you're at the start of your journey, don't despair - set your sights on 1 year from now and be prepared to surprise yourself!
Helen x
P.s. We're sitting at the front!



Hi Lyn - yes, you're right - it makes you appreciate everything a lot more! I remember looking for positive updates on this forum when I first joined and it definitely helped when I read about people having anniversaries and how far they'd come and how their eating/ taste buds / saliva had continued to improve... There's definitely light at the end of the tunnel
Helen x
Hi Hazel - I do remember you telling me you'd waved as you passed the junction for Glan Clwyd
We drive past it quite often as we have a caravan on the coast. A couple of weeks ago, Martin asked 'how do you feel about that time now, when you see the sign' - And to be honest, I just see it as a period in my life where I met a challenge and was determined I would overcome it and I did. I view it quite objectively. It was a hurdle that I cleared. I can compartmentalise quite easily, try not to get stuck in my own head, which is a useful skill for life in general.
Hope you're continuing to enjoy your cycling in Spain! We're off to Ibiza in 10 days I can't wait!!
Helen x
Hi Helen Yes I’m lucky in that respect I can compartmentalise. Spain is a distant memory lol we arrived home Saturday night. Sunday was good but now we’re on a 36 hour thunderstorm watch.
hugs Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Helen
I compartmentalize too and find it just happens naturally a little while after a traumatic event in my life that causes me extreme emotions. That doesn’t just include cancer ops but things like the passing of my parents and other stressful events. After initial grieving, sadness and anger my brain just seems to pull a curtain down on the event. I still remember them clearly but the emotions involved are no longer there unless I really concentrate hard on it and bring them back. It is like a survival mechanism otherwise I would continually be in a state of sadness which I do not want to be. It helps me move on with my life.
It’s a bit weird but I see myself as 2 different people. (No it’s alright I am not crazy and don’t have 2 different personalities)The one that I would have been prior to my cancer and how I would have liked to have been and the other one that now is the actual me and lives a different life because of the big changes after 3 large cancer ops and treatment and the adjustments I had to make. Deep psychological stuff (ha ha) but whatever works.
Everyone copes in different ways with stressful events in their lives and I am glad you are able to do that too. It certainly helps you to enjoy living in the present and looking forward to a happy future.
I do live a happy life and enjoy every day and am looking forward to the future. I have a few things still to tick off my bucket list and am looking forward to doing those.
Lyn
Sophie66
Hi Helen,
What an amazing story. I'm booked in for surgery ìn 10 days and am so scared - and it's stories like this which help me 'hope' that everything will be ok in the end.
You're a great inspiration - thank you for sharing this post as it has really cheered me up!
Jenny
I totally understand what you mean, Lyn! It is in fact adaptation that marks the survival of the fittest. Navigating change with a positive attitude and adapting to focus on and pursue the best possible outcome.
Humans are amazing, but our minds & thoughts can sometimes get the better of us. I saw this (and other hurdles in my life, as you mention) as not just a physical challenge but a mental one. This attitude/ approach sets us on a good path I think.
Also, having a strong mental attitude and great will power can help us make lifestyle changes more easily - I definitely listen to my body more now that I'm over 50 and watch my nutrition and vitamin/ supplement intake closely! It really can make us stronger Lyn
Hugs, Helen x
HI Jenny,
Remain positive and try to see it as 2 battles - the mental one is as important to win as the physical one. If you naturally have a healthy sense of humour this can help too. Although there were days when I was terrified as I have a young child (8yo), I focused on small chunks of time that I could manage and actions I could take - very basic things like getting ready to go out for treatment; and when treatment ended, I made it a point in the first week to just get out of bed, go downstairs and walk around the garden (which is very small!). You'll probably be having treatment through the summer, which is a good time - I had mine in July/August.
Set goals, keep it simple and stay positive. You can come on here and rant away, we will all understand! Best wishes for your op. I had a tonsillectomy last May then started treatment in July. Divide it into stages (op / post op recovery / treatment planning & prep / start treatment / take each day at a time/ recovery / eating again...) Remember, we all had 2 steps forward and 1 step back days! The next day is a new day!
Hugs,
Helen x
What an amazing story. I'm booked in for surgery ìn 10 days and am so scared
Hi Jenny. Welcome to the community. This is a thread with a few posts that you might find interesting
RE: Hello! 34 year old woman diagnosed with Acinic Cell Cancer looking for support
It seems you don’t have to go through radiotherapy which is what messes most of us up for a few months.
Good luck with your surgery.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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