Just joined this group

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Hi - I am a year down the line since first having problems - but only diagnosed a few days ago.  I have put the details in my profile if thats OK.

I have throat/neck lumps and difficulty swallowing solid foods - waiting for the results of all the scans/biopsy.

This has to be the scariest moments in my life so far - I  told the guy in the hospital it is like being hit in the face with a shovel (not that I ever have been! but you know what I mean)

Doctor laughter and Doctor exercise have been my best friends till now - I have white coat syndrome and health anxiety brought on by my reaction to surgery/rehab after a skiing accident.  CBT was really usefull - the mindfullness exercises/teachers made things worse because it was health anxiety - listening to my body was the last thing my mind needed to do.  I pretty much had this in control for about 6 years - But now it is back -(suprise!)  I call it my chimp (long story from the Chimp Paradox)

Sleeping - so this is something I would really like to try - My mind has other ideas though- and can think of at least a million scenarios that might or might not happen - and I do need to listen to it.

I hope I am able to contribute to the Forum and give something back - the resources are so useful - I would have been even more lost without them.

  • Welcome Rosebrry. I’m sorry you find yourself in here, but I’m sure you’ll find it very useful as your diagnosis unfolds. It’s been a great source of information, comfort and even sometimes humour for me. All the best. 

  • Hi MarkEL - Thanks  for reply

  • Hi Roseberry topping. By the way know it well walked up it several times. Firstly welcome to the community. Try not to think the worse until you’ve had a definite diagnosis you don’t know for certain it’s cancer. In the meantime csn your g p prescribe sleeping pills to get you through the next few days ???try not to worry not all problems are. I had no symptoms what so ever  sore throat no problems swallowing all I had was a lump in my collarbone. Please come back to us when you’ve had your meeting. If need be we’re here for you 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Roseberry and welcome to our little community. I've walked the Cleveland way and have a photo of me by Cook's Monument some where.

    So sorry you are here and in the circumstances you describe. My daughter suffers significant health anxiety so I have an inkling of the distress you are feeling. Can I ask you to stay off Google if you can. It's full of misinformation and out of date statistics.

    Well done on getting through the MRI. Head MRI's are challenging enough under more normal circumstances. We are all experts here Slight smile

    It may not be cancer. Let's hope it's not but if it is modern medicine is a wonderful thing and this forum is full of folk who DO KNOW how cancer feels and the trials it brings . There's lots of advice and many shoulders to lean on.

    Fingers crossed for your results

    Best wishes

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Hazel - thanks for welcome - and for the good advice -  I did get some low strength sleeping tablets from gp yesterday - so had first reasonable nights sleep in ages last night - I won't take them tonight but will try and get into a more normal sleep pattern again, just use them intermittently (he says confidently)

    Nice that you know roseberry topping -

    Cheers

    Steve

  • Hi Dani

    We often park up at the car park immediatley below Captain Cooks and do a circuit to include the monument.

    I think you are right to advise to stay off google - The consultant did give a verbal confirmation that it was cancer when he did the biopsy and said it would be treated with chemo and radiotherapy - But as you say - the test results may be more positive - I have my fingers crossed.

    It does seem to get a little easier every time I acknowledge where I am.

    Thanks for the words of  encouragement they are appreciated

    Cheers

    Steve

  • Hi Steve. If you are unfortunate to become a fully fledged member of the group please take hearly  there’s lots of us on here that have done the chemo and radiotherapy I am 3 years post radiotherapy in august was diagnosed May 2018 so you could run parallel to me. The treatments hard but I was 61 when diagnosed and am still here to tell the tale ride bike snd walk the hills plus travel to Spain when Boris allow s.are you at James cook Middlesbrough? 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Hazel

    Yes James Cook - but was lucky to be able to have the scans at the Friarage in Northallerton - because it is much smaller it seems more personal and people friendly - Not that the staff in JC aren't - they couldn't have been more thoughtful when I was there to see the consultant - but you don't have the hassle of driving into mbro - struggling to park etc etc I am sure you know what I mean. 

    I am thinking I will change up to an electric bike so I can still do the hills - I love the views across to Saltburn - Tees valley and over to the Cleveland/Hambledon hills - I know some advice is to wait till meeting - but we both want to plan positive things that we can do now - we have tended to procrastanate over decisions a bit too much in the past.

    What a difference today though after I saw doctor Sleep last night - It was 3 nights without any sleep and it just brings you down so much. We were up in the forest by 8.00 this morning and so quiet except for the birds giving it rockall!

    Cheers

    Steve

  • Hi Steve. I’m up at five these mornings to listen to the morning chorus. You can’t beat it. Husband and I live in a small holding in Wales where the skies are dark and neighbours few. Trust your team to pull you through. That’s what they do and they are good at it 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Steve we lived in hinder well whilst hubby was working at Boulby potash mine do knuw the area. We were there temporarily home is West Yorkshire do we drove home every 3 rd weekend. Salt burn our favourite place in coast. Yes planning is good with my oncologist permission 8 weeks after treatment we flew to Spain for 4 weeks gave me something to aim for. He only allowed it as was going to our own stuff not an hotel. I rode my bike for first time 10 weeks after onky 8 lm but was worth it. Remember C isn’t the sentence it used to be. Yes know Northallerton as well used to go to Wednesday market. 
    hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/