just been diagnosed but can't find primary

Hi Jeremy so sorry you are going through this, I had the same hpv t1nomo t2n1mo, with no primary. I had 2 chemotherapy and 6 weeks of radiotherapy.  I am 7 months post treatment.  I can't lie to you treatment and recovery is rough but you do get through it.

And this is a great group who will give important info and support.  Do you have a Maggies near you?

Hi Jeremy

did you have a chance to look at Peter’s profile?

Watch and wait is not for everyone  some of us can’t wait to get rid of everything but others are less risk averse  

I was never in that position so can only direct you to others who have. I’m sure Peter will be along soon to help out  

He had a neck dissection to remove the cancer in his neck? Has that been mentioned? 

Hi

Yes I have just read it, what a journey but it give me hope and an insight.  I have asked about removing the neck node but was told that it is responsive to the therapy, but don't know what that is. I was just shocked at the possibility of broad RT and the damage it causes if they can't pinpoint the source accurately.

Jeremy

Hi Dani

I've just read your treatment story and it gives me hope that things can be good after treatment.

Thank you for your support

Jeremy

Fingers crossed that your surgeon finds the spot. 

I was diagnosed with head and neck cancer  over 3 years ago, the first biopsy was inconclusive, called back for a second one which pinpointed the left tonsil and neck node(s)...Chemoradiotherapy was the route for me...no surgery... pretty harsh treatment but very effective... recovery takes time and patience...

Good luck.

Thanks for the support. No there's not a Maggies near me, I'm in Mid Cornwall. 

RCH Truro have a MacMillan dept. Is that too far from you?

Ray.