Tonsil newbie

Ohyes 2 months ago

4 replies
155 subscribers
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Hi there

I've been diagnosed with HPV positive SCC and I'm starting chemo-radiotherapy in a week's time.

It's been a bit of a rollercoaster, as I struggled to get an ENT referral, but once I managed it, the team have been amazing.

I've had chemo before - but radiotherapy is a whole new, and slightly scary, world!

I've found this forum super helpful already, especially discussions about recovery.

Polly

Beesuit 2 months ago

Hi Polly

Welcome to our Community

Stay with us....you'll have lots of questions and there is always an answer somewhere Have a look at THIS THREAD to get you started

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

Micky55 2 months ago

Good luck with the treatment Polly...fire away with any question...loads of support and great advice on this forum...24/7

Michael

Ouch 2 months ago

Hi Polly,

Mine is/was tonsil. Still two more zaps to go.

It seems everyone reacts differently to treatment so what I've experienced is

The radiotherapy staff (I'm at Mount Vernon) are amazing and so helpful. The radiotherapy doesn't hurt in the slightest and when I have my shell on I imagine I'm floating on a lilo just off a beautiful white sandy beach. The shell is only my sunhat on my face to keep the sun off.

You will find your own way to count down the time.

Nearer the end my neck is red and itchy but not all the time, only sometimes.

My throat isn't so sore that I can't swallow liquids.

The whole thing is tough but we can do it.

Good luck on your journey.

RadioactiveRaz 2 months ago

HinOhyes welcome to the club none if us wanted to join. I’m 8 years post treatment HPV driven tonsil cancer. Take it one day at a time one step at a time.

ask any questions

Hazel x

Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo 3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life.
No questions too daft to ask.

I’m also an ambassador for https://oraclehnc.org.uk/

A leading head and neck cancer charity.

This is a link to a webinar i did with Oracle explaining the process of diagnosis.

https://oraclehnc.org.uk/oracle-launches-new-webinar-series-to-support-head-neck-cancer-patients

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