Hi all In 2019 I was diagnosed with Sinonasal SMARCB-1 Deficient Carcinoma. I was treated at the Churchill clinic in Oxford. I had TPF chemotherapy (that didn’t work), followed by an operation (I lost my eye) and 6 weeks of radiotherapy. I’ve had...
Are you reliant on Ensure? Is your NHS Health Service planning to stop prescribing it? And if so, how are you coping? I had tonsil cancer SSC (treated with surgery, chemo + RT) in 2011. The cancer reoccured two years later in my pharynx and I had...
Hi Does anyone have any experience with oral irrigarors ? My cancer is right side of tongue and right floor of mouth. Due to this I have lost part of the floor of my mouth and find small pieces of food get stuck in the cavity, even though i try my...
Hi, Got hold of CN to ask about vaccines and treatment.They advise that flu/covid jabs are taken one week before chemo.May be different in different trusts. Maybe of help to someone . Turi
My Ex and the father of my daughter was diagnosed with stage 4TA cancer of the voice box, He has previously had cancer in the voice box but underwent treatment 3 years on the cancer came back. He has now undergone a full laryngectomy pharagectomy and...
Wonder if anyone knows answer to this.......I've been called for annual flu jab is it ok to get it as Chemoradiation starting at end of August ? Thanks Turi
Hi, My husband has been diagnosed with Base of tongue cancer stage 3. He is now waiting for chemo/radiotherapy at The Christie Manchester, which will start 21st Aug. He received another letter today, it's states :T4 N2c MO..can someone decipher...
Hi all,as they say it helps to talk,so here I am “talking” …..so it’s now day 8 after my husband’s first cycle of intense chemotherapy and it’s as every bit as awful as I thought it would be!! I have now been signed off work with anxiety and stress,it...
Hi Group, Please can anyone recommend an acupuncturist who has successfully treated them for a dry mouth? I’m keen to give it a go Any tips or information will be gratefully received Carrie
I was wondering if anyone who had completed treatment had lumps still in their neck. I underwent 6 weeks of radiotherapy and 2 lots of chemotherapy for hpv16 postive in lymph nodes, my primary was unknown. I finished treatment on 6th of May and had...
