Lumps remain through-out treatment

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I was wondering if anyone who had completed treatment had lumps still in their neck. 

I underwent 6 weeks of radiotherapy and 2 lots of chemotherapy for hpv16 postive in lymph nodes, my primary was unknown. I finished treatment on 6th of May and had pet ct last Friday. (Not had resultes back yet)

All through my lymph nodes reduced, I could and still can feel small lumps were in my neck, which I've pretty much resided myself that the treatment hasn't worked. Throughout I've spoken to my oncologist/nursing team about the lumps still being there and they've all provide postive reassure, however I was under the impression from what I was told at the start of treatment that they would be no lump present at scan stage. 

Did anyone else experience still being able to feel lumps after treatment then went on to have all clear scans. 

  • Hi WesG  sorry you have this worry after going through your treatment, I think I have read somewhere on this forum that this can happen. I would try to take comfort if you can, from the reassurances you have been given by your team. You will have your scan results soon, hopefully that will put you mind at rest. Fingers crossed for you.

    Regards Ray.

  • Hi Wes. I see nobody has replied yet so I thought I might try to put your mind at rest. I didn’t have any nodes involved but there have been plenty of posts here describing exactly the same problem. I think nodes can take a long time to resolve as the body mops up the dead cancer 
    I know my mate Hazel had her lymph nodes still up after treatment and her PET was clear so try not to worry. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Oops Ray beat me to it. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Dani, I'm pleased you came back with your answer, I was sure I had read about this happening.

    Ray.

  • Thank to you both. 

    I went looking through a  few old post last night to try see if anyone else had commented on this experience! I found a few which were along the lines of what you're both saying. 

    It's very helpful, thank you. 

    I've been mostly relax about it throughout treatment but once I had my scan on Friday, I felt unable to let it rest and been going over and over things. 

  • , I felt unable to let it rest and been going over and over things. 

    Try not to. Through my treatment I absolutely trusted my team. I was told that treatment aimed at cure and that our cancer responds really well to RT. It’s difficult to trust your body at times though, isn’t it. Your team are relaxed about it. Perhaps they might have taken the time to say why. 
    Head down, keep busy. Those results should be through to your oncologist by Friday so give them a ring on Monday. Best of luck. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Wes. It’s not uncommon for our lymph nodes to take time to reduce.  Try not to stress by the time my treatment started I had 7 I trusted my team to cure me  they did. I didn’t stress they will go down  they are fighting a lot if stuff being  thrown at them. Remember HPV positive tumours respond extremely well to treatment. Keep yourself busy. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi WesG, I am about 5 months ahead of you in recovery , I had CT scan in March and results clear. Anyway in response to your question I had several cancerous lymph’s and a lump about half golf ball size on my neck . The lump disappeared with treatment but I can feel and see lumps and bumps on my neck which I never noticed before , my ENT specialist assured me nothing to worry about and all normal , he has pointed out we all become extremely vigilant after going through RT plus I’ve lost quite a bit of weight round neck and I think this makes lumps bumps more prominent , hope you get your results soon and all good news.

    if I can help with anything just ask

  • Sorry I see I’ve replied to you Hazel oops

  • WesG , I replied to Hazel by mistake so rather than duplicate just read it