So today following a few weeks of tests and scans I got the news that I have got Nasopharyngeal cancer. To be honest not something I have heard of before, but having Googled it, it sounds like its pretty rare. By the sound of things I will get referred...
Hi I finished radiotherapy at the end of April for base of tongue cancer. I am still having problems swallowing, I can manage fluids but as soon as I have anything thicker I really struggle. I have managed yogurt providing it’s not too thick. I did...
Hi All Had my 8 teeth extracted and feel preety crap but had phone-call to say Im now eligible for randomised trial at Weston Park for Durvalumab just wondered if anyone else had been on it or tried it or had any aide effects . Bit worried after reading...
Hi all, I had my first post-treatment scan, yesterday. I was expecting to have a meeting next Friday with my oncologist Just been told that it has been pushed back another week. I just wanted to say this out loud to a group of people who will understand...
Not been on here for a few weeks as OH and I have just being living day to day with his throat cancer. He finished RT last Tuesday and had a feeding tube inserted into his stomach 5 weeks ago. He is really struggling with the RT burns on his neck and...
Hi. I’m 8 months post Radiotherapy and Chemotherapy for a tumour on my epiglottis with 3 lymph involvement. Just this week I have developed a really stiff jaw on the left side. It’s painful and I can only get 2 fingers in my open mouth where it was 4...
Hi, Due to start treatment on Monday 4th Sept.Just wanted to say thank you for all the advice ,tips etc etc and putting up with my daft questions.There are many more of those to come I'm sure. Feeling nervous as I have read so many times it ain't...
Hi everyone, I'm not very good with tech, and I've never really done any web chats, embarrassing for a 42 year old I know but bear with me! I have been diagnosed with a snuc during lockdown that has spread to the lymph nodes in my neck and also into...
Can I ask about people's experience with neck/throat and swallowing exercises? What ones do you do, and for how long after treatment or are you still doing them? Nine months on, I'm finding it hard to stay motivated to keep doing mine once a day, as...
Hi, Partner is having some of his tongue removed due to a tumor and replaced with tissue from forearm. He has been told that his speech will be permanently affected. The speech therapist said he should be understandable but will struggle with certain...
