Feeding Tube sprung a leak

Good evening Rizzle, thankfully when I had issues the Abbott nurse came out straight away, your husband did the right thing by leaving the tube still in, i had to do this while waiting for the nurse to come out. I think it's bad that there is not a  nurse on duty who has been trained for situations like this as it's such an inconvenience and can be rather worrying for some people. I hope your OH had a better day today and he is back on the mend, take care.

                                                                       Chris x

Morning Rizzle , i so feel your pain as my hubby has just finished rt and has a PEG but not using it. He's team told him that the PEG will need to stay in for 6 weeks after even though he hasn't had to use it. Well on Wednesday night the balloon popped for the second time i might add. Nutrition nurses said sorry we cannot help as it 4.45pm and we finish at 5pm. Please call the Frez nurses but we know from first time it happened they wont come out after 4pm because there not insured after 4pm . We went to local A & E the first time and they turned him away. Anyway the Frez nurse is coming out to him this morning but the PEG fell out during the night and woke up to it taped to he's tummy but it's out. It's so frustrating that there was nurses queing to put the PEG in but nobody wants to help or take it out. Chin up and hope they have sorted your husband out now as he needs hes xxx

Do you have a Nutricia nurse? I just had my tube replaced (after 4 months) and she came to my house and replaced it, very easily. Once the tube has been in for a few weeks (so that enough healing has happened) then replacing it should not require a hospital visit. Most doctors and nurses seem a bit scared to mess with reinsertion of a tube, but Nutricia nurses seem very well trained and made me feel very confident.

Rizzle I had a situation in 2020 when my tube decided to break on Christmas day of all days! Bit in my stomach was intact but the feeding port section had popped off and no amount of coaxing would get it to re-connect, pressure blew it straight off again ever time.

Went to A&E in Exeter and got handed around several people who looked at it and didn't have a clue what to do. Eventually (six hours later) one of them did a Heath Robinson "repair" with large amounts of sticky tape!

Couple of days later two nurses from food supplier came out and put another one in in five minutes: as the previous posters have, go with your supplier.

PS I was raised in Guildford, do you live locally?

Thank you all, new feeding tube fitted and he is doing much better now.

MikeO, unfortunately we don’t get our food from a supplier, we get it on prescription from our chemist as he couldn’t tolerate the food the hospital recommend but the chemist can get next day delivery of one that’s works for him.

we don’t live in Guildford, we travelled from Gatwick every day - it was a bit of a slog for 6 weeks but now we only need to go every couple of weeks at the moment then monthly so not too bad.

Glad it's sorted...Gatwick to Guildford quite a slog as you say!

Rizzle said:

he couldn’t tolerate the food the hospital recommend but the chemist can get next day delivery of one that’s works for him.

Hi Rizzle. Quite a few people have problems with Ensures and Fortisips. What does your husband have instead? 

He has Vital, comes in 3 flavours (vanilla, latte and mixed berry) and seems to be working thank goodness plus we are still blending some of our own foods and making fruit smoothies.