PET CT scan, yesterday. 2 week wait for results

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Hi all,

I had my first post-treatment scan, yesterday. I was expecting to have a meeting next Friday with my oncologist

Just been told that it has been pushed back another week.

I just wanted to say this out loud to a group of people who will understand my scanxiety!

By the way, the scan itself was fine. I fell asleep twice Grinning

Steve

  • It sucks. Not enough staff to interpret the scans. 
    Whole system needs a huge shake up, never mind masses of money thrown at it. 
    Remember failure this early is practically unheard of. Fingers crossed. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thanks, Dani

    Diagnosed Feb 2023 with base of tongue cancer, oropharyngeal squamous cell carcinoma (OPSCC), HPV positive, staging: T4aN2CM0

  • Hi SteveyN As Dani says failure at this stage is practically unheard of. Just put it out if your mind and fingers x fir next week. 
    hugs Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • I had my PET scan on 21st Aug which had been delayed a week due to scanner breaking. Waited for an appt till 4th Sept & then I rang & was told secretary would pass it to oncologist. Oncologist phoned me on the evening of 5th Sept saying she’d been on hols & not to worry my scan showed no evidence of disease. A 30 sec call & I’ve heard nothing since. Although I’m relieved there are still loads of things I want to ask, as well as seeing the scans myself. I do think the aftercare so far has been terrible considering what we go through. You’re so so right the anxiety is off the chart. Hope you get news soon.

    Maureen

  • as well as seeing the scans myself

    I’m trained to look At scans but the PET had me floored. Every single part of the body that is metabolising glucose quickly shows up as a hot spot. Brain/muscles including some in your throat when you swallow) heart/liver/ kidneys. How they make head or tail of it I don’t know. Must take years of experience. No wonder AI is better at some of it. 
    When is your next review? Just make a list if your questions for then and try not to fret too much. Your consultant has at least given you the news you needed to hear. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Good evening Steve, well done it having the scan done, i never mind having them done but i can see why people get anxious over them, i know there are delays in some areas due to lack of staff, strikes, and of course, COVID, love the falling asleep part it put a smile on my faceSweat smile, Wishing you all the best for next week, take care.

                                                                                                    Chris 

    Its sometimes not easy but its worth it ! 

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