Speech

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Hi,

Partner is having some of his tongue removed due to a tumor and replaced with tissue from forearm. He has been told that his speech will be permanently affected. The speech therapist said he should be understandable but will struggle with certain sounds. Just wondered if there was any insight on how bad it might be please.

Thank you

  • Hi and welcome. You might be pleasantly surprised how well the speech will end up. I have a friend who had half her tongue removed and all I can discern is a slight lisp. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi

    I've had that surgery and yes it has affected my speech. Some words like gate, skiing and some others I struggle with but overall I'm quite intelligible.you just learn to adapt and if I struggle I over enunciate which helps

    Wendy 

    Wendy

  • Thank you, showed my partner this x 

  • Thanks Wendy. He had the surgery yesterday. It was upsetting when he got admitted as he found out they are taking 50%, possibly a third of his tongue. I think he feels quite hopeless about it, I told him I have spoken to people from Macmillan and this forum and he will heal and be able to speak etc, but obviously I haven't been through this myself. I feel awful to think of him lying there thinking he is doomed (I know he isn't) and will never have the same quality of life again. 

  • Tell him it will be okay. I lost somewhere between a third and half of my tongue & most people just think I have a lisp. Tell him to be patient. I had to have radiotherapy after, hopefully he won't. It probably took me up to about 3 years to be at my best from an eating and speaking point of view. It will be 6 years in November since my op. I also had a neck dissection to remove my lymph nodes. 

    Wendy

  • Thank you, this really helps and I will tell him x 

  • Scared today that he will need radiotherapy. How soon after your surgery did you find out you needed it please Wendy?

  • How soon after your surgery did you find out you needed it please Wendy?

    I think they tell you as soon as the biopsy results are back. Has he had a PET scan  to see if there is any lymph node involvement? 
    My neighbour had tongue surgery and avoided RT but her tumour was small and the excision was simple. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Thanks Dani. He had a biopsy, CT and MRI and they said there was no evidence that it has spread, but he has still had a neck dissection so I am worried now that we will get the news he will need radiotherapy/chemotherapy. He is very low.

  • Hi please don’t worry over chemo radiotherapy. It’s hard but I’m almost 5  years post treatment and living a good life. 
    Evrrobe on here will always help both if you. 
    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis.