Hi all.
I was a member on here on 2022 when first diagnosed however though it was done and dusted so left.
This time it is different and I am struggling to find other thyroid cancer patients in similar situation.
My Papillary Thyroid cancer spread to lymph node higher than the surgeon wanted to operate so MDT decided 6 weeks of daily external beam radiotherapy would be suitable.
I am 3 weeks into it, throat pain is shocking but I think the disgusting taste is worse for me than the pain. It's not that the food tastes off, I literally cannot eat anything as it tastes like vomit. Don't know how else I can describe it.
Any advice on how long can that last?
I am struggling more mentally as I always liked my food, I enjoyed cooking and trying new recipes. And now I am trying everything and all taste the same - like a vomit 
Thank you.
Hi Izzy.
there is a group for thyroid cancer patients here
https://community.macmillan.org.uk/cancer_types/thyroid-cancer-forum
But most of us can help you with the effects you are suffering from.
I had an NG tube but many of us have PEGs which go through the abdominal wall straight to the stomach.
When my food started to taste foul and the throat pain was overwhelming I just gave up eating and used my NG for everything.
I didn’t swallow anything for eight weeks. It was the best thing I did.
My taste was all over the place for six months but we are all different and there are folk here who recovered much more quickly.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thank you.
Unfortunately none of them thyroid cancer stories matches my disease progression - hardly onyone with Papillary Thyroid cancer will have full blown radiotherapy.
So wanted to ask people that had that and no chemo for other head and neck cancers.
No one ever mentioned peg or NG tube to me, I don't think I would want one, but I am wondering why it was never an option. I don't want to ask them either as don't want to give them ideas 
Anyway, thank you for your reply. Best wishes.
Izzy
