Update

Thank you , brilliant tips that I'll start now . Love the people on here , so supportive . Just don't know how I'd have coped without you . Still a way to go ,I know that xx

Hi like Dani says I had ng feeding tube fitted week 3  of treatment. My trust didn’t routinely fit pegs but I had to consent tk ng tube if needed. Oh boy it was needed mine was in fot 6 weeks it was a lifesaver all

my meds and feeds went into it plus takes the pressure off trying tj eat and drink enough calories. So yes have it fitted. 
hugs Hazel. 

 Good evening, Moi. I agree with Dani and Hazel regarding having a PEG fitted; it's best to have it fitted now rather than further down the line. You will find it to be a great asset, as side effects can sometimes affect your swallowing/eating. They are very easy to use once you have mastered the basics. Once you have made a good recovery, it can be removed. Wishing you all the best.

                                                          Chris 

Hi Chris , 

Thank you for this . Yes I will be accepting the peg having read other people's experience of using it . Must admit I am nervous about treatment but at same time so very appreciative that it's there . 

I am worried about my partner and how he will cope but he's so supportive and will do a grand job I'm sure .I do think he needs time to have a break himself and will approach that as needed . How did people's partners family cope when you guys went through treatment ? 

Moi said:

How did people's partners family cope when you guys went through treatment ? 

My husband used to be in Mountain Rescue so the step up was natural. We lived in splendid rural isolation so he drove me to all my appointments and treatment. He looked after my drug timetable and hooked me up to my feed pump at bedtime. Bless him, he knew when I needed space and took himself off to his workshop or walked the dog. He is very self reliant. I always advise fellow travellers that it’s a two way street. Both patient and carer need that space.

As far as family and friends are concerned it’s your show  You’ll know which ones to let in and which ones your partner can deal with 

You’ll find a way 

Good evening  Moi, my hubby struggled a lot from about 3rd week starting to about 3mths finishing. I am not gonna lie,it was heartbreaking to watch,being helpless,wanted to take the pain away just too often,cried myself to sleep once too many times. But I needed to be strong for the both of us. Eventual he started to get better and I could leave him for a few hours so I could go back to work. Fellow wife Mel x

My husband actually joined this forum and gained a lot of support initially.  Everything is so daunting at the beginning as it’s full steam ahead with all the pre appointments.

Plenty of friends have offered to shoulder the burden of the daily trips to the hospital but he’s adamant that he wants to be the one who takes me and be by my side.  I’m into week 3 of CRT for T42Nb tonsil cancer. Chemo day for me is weekly on Tuesdays. He packs a picnic and takes himself off on a long walk whilst I’m having treatment. That gives us both a break

He’s taken over the cooking and producing some delicious meals ( only taken him 29yrs!)  

I have 2 sons, one who is still at home and both have been so supportive. Telling them was just about the hardest thing I’ve ever done.  To end on a positive note, my youngest son came to visit on Sunday and told us he’s going to propose to his lovely girlfriend whilst on holiday in Greece in May. Something that’s going to get me through this treatment

Ally3 said:

my youngest son came to visit on Sunday and told us he’s going to propose to his lovely girlfriend whilst on holiday in Greece in May. Something that’s going to get me through this treatment

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Hello Moi

Just popping up to wish you luck and send solidarity and offer my positive story.

I found this forum so helpful when I was going through treatment. If you have time,  it's worth writing something in your profile - it saves you repeating yourself and you get better-informed responses. 

Catriona

Hi there , 

Thank you , 

That's a good idea about writing my story . I will be honest and say I have just been reaching out in desperation and fear . However, I will do this today as makes perfect sense . I read your story and was just amazed . 

Thank you for your support .

Moi