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Had my results at my appointment today . HPV positive , no distant spread . Now for treatment xx

  • Have you appointments for all the stuff that follows yet? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Yes lots.  Thank you all for listening to me stressing . Treatment now  no real idea what to expect.  Other than six weeks radiotherapy and three chemo therapy 

    Moi

  • Hi  we’re all here to help. I found once I knew treatment plan my mind went into ok. Lets so this . Hpv  deiven  cancers have a 90% plus curative rate. Lots if us in here still around to tell the tale. Treatments not easy but if I could do it anyone can inhas 7 weeks and 3 planned chemo but only did 2 chemo as we jointly with oncologist decided against  3 rd. 

    hugs Hazel xx

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Hazel , 

    They want to fit a feeding peg . Did you have one ? X

    Moi

  • Hi Moi,as a fellow wife I feel for you, also my hubby is now 15ish mths post treatment and doing well,considering. Like you,he had a PEG fitted,got done prior start,and it was a life saver,3wks into treatment,swallowing anything became impossible,and just like Hazel said,once we had our treatment plan,detailed every single appointment  ect, it became the case like ok let's do this. We knew it would be a bumpy road,some days a 'one step forward,two back' kind of thing, but we got there. So stay positive,you can do this. Hugs Mel x

  • Thank you Mel , 

    That's good to know.  I'm lucky I have everyone here that have been through thus treatment and help me to prepare xx

    Moi

  • Have you got support at home? It's gonna be tough on your loved ones too,to see you going through this,I know,it was heartbreaking having to watch my hubby suffering,but I had to be strong for the both of us.All the best Mel x

  • Hi , 

    Yes have my hubby and two grown up sons who live not far away . Hubby will need a break i think and some help xx

    Moi

  • They want to fit a feeding peg . Did you have one ? X

    Neither Hazel nor I had one. We both had NG tubes when we ran into trouble. If you are offered a PEG take it. You need to keep up Nutrition to make a good recovery and you need a foolproof way of taking analgesia. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • You will feel much much better once everything kicks off. 
    Have a look at this thread about treatment

    https://community.macmillan.org.uk/cancer_types/head-neck-cancer-forum/f/diagnosis-and-treatment/287136/helpful-tips-for-those-about-to-start-treatment

    Lots of people here to hold your hand through 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge