Secretory carcanoma of parotid gland and targeted gene treatment (Larotrectinib)

Hi. I can’t recall anybody here so I searched for you but all I can find are your posts. Are there any support groups on maybe FB? 

Maybe here? 

https://www.salivaryglandcancer.uk/about-us/

Thanks, I'll check out the salivary gland cancer link.  So hard to find anything on what my son has.  I can't find any FB support groups either.  Our oncologist hasn't come across this in someone my sons age.  

I am so sorry you are both having to deal with this

Do let us know how things go if you’re up to it. 
Hugs

Thank you, I will.  

Hi. I’m sorry to hear of your son’s situation and can’t help on the specifics. But I wondered if you/he had also tried talking to a cancer charity that specifically supports young adults such as Shine Cancer Support? He at least might be able to talk to  other young people. 

kate

We're not based in the UK.  As this is his 2nd time to have cancer we're linked in with all services.  Unfortunately he doesn't want to avail of any services for now as he doesn't know of anyone who has gotten a 2nd unrelated cancer and he's not ready to join these groups again.  We are all trying to encourage him especially his oncologist who runs a 18-24 year old support group. 

Hopefully he will in time.