I am at the end of week 3 of my chemo radiotherapy and although I am mostly fine, the taste buds have been affected now and most of the food tastes bad. I decided that I will try to eat for as long as I can to keep my muscles working but it is now a big struggle. Would anyone have any suggestions how to keep on eating? Should I just start with liquid food? The PEG is there if I need it too but I prefer to keep on feeding through the mouth.
Also, my mouth started to feel dry and the mouth tissue feels bruised, leathery, no ulcers yet, just slightly sore.This also puts me off food. I have Biotene mouthwash, can't say it's making a difference. I know this is just a beginning but has anyone found a remedy that works?
No remedy aside from try different foods to see what you can stomach at that stage in your treatment (and recovery). I ate (stubbornly) through to the end of treatment. My advice would be to start PEG feeding now, or quite soon, and just do your swallow exercises. Nutrition is vital during treatment and recovery.
I would think you are close to the stage where the ulcers will appear. We are all slightly different. I never found any mouthwash that worked to enable me to eat. However to keep the mouth clean water with salt and bicarb as a mouthwash worked well for me. I also used Oral 7 mouthwash which I found effective at tackling the dry mouth. It is not on prescription and may not work for you. I now use Biotine gel for overnight some 2 1/2 years post CRT.
Agree with Peter
As soon as food tasted awful and my life was a struggle I was thoroughly miserable and felt there was more to my life than all this so everything went down the tube. It was a revelation. I could enjoy the world around me without fighting. it’s not for everyone though. Some people need the control. I found control in my blog and my diary. I didn’t swallow anything at all for eight weeks. I did my exercises and managed a steak at 12 weeks.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hello Rose
I didn’t have Peter’s stoicism. I pretty much gave up on taking anything by mouth after 3 weeks of radiotherapy. Apart from anything else, taking Fortisips by mouth was so disgusting they made me sick, which kind of defeated the object. I’m not sure I see the sense in adding stress over food to everything else at this stage…but we’re all different. Good luck with whatever you decide to do.
Liz
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