Rig help

SueEssex said:

one whole bottle in the tube that took 30 mins which made me feel sick and my stomach sounded like a drain with constant running water

At RT tomorrow ask about a pump. You can drip feed slowly. I did it overnight. It was a revelation. 

SueEssex said:

Ive also got diarrhoea with the liquid food

Tell RT you need to see dieticians. This awful food they give you doesn’t suit everybody and there are alternatives if the pump solution doesn’t work. 

the dietion said friday about a pump but i dont want it as when i was nursing all those on a pump ended up with loose stools ans as all these other things are going straight thro me i dont want the pump incase it goes straight thro me being at hospital 5 days a week i to scared to try it i going to ask tomoz if i can have a weeks brake x

iam the same still trying to learn how to use this site lol iam defo asking tomoz if its poss to have a weeks brake b4 my next 15 sessions my throat seriously cant take no more ir had 6 ops in the last 4 yrs for 2 previous cancers so is weak any way xx lets hope we both start to feel better soon i know i cant take much more of this xx 

dpanky said:

going to ask tomoz if i can have a weeks brake x

Crikey…. I absolutely do know how you feel. It’s awful being out of control and knowing it’s only going to get worse but I doubt they will let you stop the RT. The treatment is cumulative so it will continue to work so you’re not likely to get any respite and you are running a  big risk in the treatment not working. 
Please try to hang on you CAN take it even though you feel you can’t. 
What pain relief are you on? I had long acting morphine twice daily on top of the oramorph and it was a revelation, a complete game changer. 
Sending you a huge hug. 

Hi As Dani says I still unlikely they will allow a break in treatment it’s cumulative and if you take a break you don’t know what that would do. Even during Covid people in treatment who caught Covid still had to go in if they missed a day it was double the next day. What pain relief are you on ? Are you getting enough hydration I was told 2-3 litres of water every day to help flush the toxins out. It’s hard but please try to stick with it. 

hugs Hazel 

iam on the slow releass morphine and oral morph but its helpinh but only to the point i can swallow once here n there my throat is almost closed up due to swelling any worss i going to have to call 999 i constantly got a rattle of phlegm iam having to spit out as i can not swallow i cant carry on as iam going to choke on my throat closing all together as its not far that now non stop thick mucus as well i sound like i got a rattle in my throat constantly as well i cannot get worse or i will end up choked from my throat closing due to swelling up so much x

That is exactly what a couple of patients at my hospital are going through and they also constantly spit out their Phlegm which is the major problem. Do you take Caphosol mouth wash 4 times daily as that gives you back your saliva which helps with the phlegm. I do get that every so often and know how awful and stress fall that is, probably the most I’ve panicked with this stressful time.

its so bad i cannot swallow at all i can see them keeping me in hospital once they see the state odlf my throat and me x

hi i cannot swallow due to throat swollen and almost closed up and phlegm so thick i tried drinking water but cant swallow i put extra water through my tube but vomited it all up in the night iam on slow release morphine twice a day and oral morph every 4 hours but not managing to swallow it now either i cannot carry ok on like this inreally cant