Neck stiffness, pressure in head

Good evening ER1, are you still seeing your consultant as you should not be feeling like this in my opinion, so i would recommend you phone the Maxillofacial Department (head and neck) for an appointment A.S.A.P. Its most probably something simple but its always best to get it checked, you should get a quick appointment due to your history. Especially with the tiredness and fatigue. wishing you all the best, take care.

                                                                            Chris x

Thanks Chris 

i have an appointment next Tuesday. Spoke to my GP yesterday and he said radiation sickness but dr Google says should be settling by now. I feel really sick and dizzy this morning 

thank you 

Elaine 

Hi Elaine Would go with Chris you need to see consultant. I would go with radiation fatigue can’t recall radiation sickness lasting this long. Hope you get something sorted soon. It’s all very debilitating,do you have a scan booked in for later ?if not ask them. How’s your blood pressure ?mine was erratic the first few months after treatment.
Hazel x

Hi ER1

I agree with Chris, please get an appointment and get checked over. I have had neck dissections at different times on both sides of my neck and radiotherapy both times and although my neck was a little stiff initially it was not for long and it healed fairly quickly although there are some ongoing changes in sensation. I was deaf in my left ear after my maxillectomy to that side but did not have tinnitus. My surgeon put in a grommet to drain the fluid and it fixed it in no time. I did feel weak and wobbly for a while after radiotherapy but after about 3 months had regained my energy and was pretty much managing everything I could before.

Hope you get some results from your medical team to help with the issues you are experiencing.

Lyn

Thanks Hazel 

no scans booked but do have appts pending. My BP is often on the lower side 95/ 60 

I feel like inm in the last chapter of my life! Even though the surgery was curative :( 

xx

Thanks Lyn

thats good to know. I have an appointment next Tuesday so fingers crossed, i feel like theyve stiched my neck too tight lol and it’s straining the neck all over. Hope they sort something out. I was referred to ENT about my hearing and tinnitus to be told i had about a 5-6 months wait! I do have an ent appointment in august but i think thatz only because the oncology nurse who discharged me (and doesn’t know me) thought i needed follow up with ent rather than max fax ! So im keeping quiet about that one and fingers crossed ill get help. Feel i ant it now though, august seems so long away :( 

thank you x

Hi ELaine  wonder if it’s lymphodema ? Just a thought. Are you swollen in neck area ? 
I was extremely lucky no lymphodema in fact apart  from a little bit of fibrosis which I easily manage my necks fine. 
Hugs Hazel xx

Not sure theres a slight overhang of skin around my wound but ive lost a good amount of weight so more like “old lady sag” lol x

Oh bless you. Radiation fibrosis I can only describe cas a poker being in your neck mine is slight started  2 years after treatment don’t think yours is thst but worth asking tgrm to investigate  o both lymphodema snd fibrosis xc

Cheers for that Hazel, 

ive just been googling!! I do have a slightly squidgy chin and certainly some of my symptoms point towards that as a diagnosis. I have found a really good exercise video on massage for the neck and it actually feels quite nice. So im going to fo this as it wont hurt. 

xx