Hello Everyone. My husband has started week 3 of treatment for tonsil cancer. He’s starting to feel effects now with dry mouth and soreness. He’s in hospital during the week and home at weekends. I’m looking for advice on what I can feed him at home.
He says:“it looks like food will have to be little and often, easy to digest cool and bland for a little while.”
What do you recommend? He’s got 40sips too which he is going to start on, and a PEG but can manage swallowing.
TIA for your help xx
Hi there
Soft foods like custard, eggs, rice puddings and creamy desserts are easy to tolerate. He may find that his taste changes though around this time. Foods started to taste bitter and unpalatable around end of week 3 and I ended up just on supplement drinks. I didn’t have a PEG or NG tube so there were more calories in the drinks rather than the food I was eating. The tiny pots of Ambrosia rice are ideal. There’s probably about 3-4 tsp in one little pot so there’s no wastage.
Sending hugs
Ally x
I’m now 7 weeks post. There were a few weeks were I couldn’t even swallow water. For me it has improved quickly I can now pretty much eat anything including things like pizza and toast. Taste is lacking in most things but I have an appetite again. For a while I had zero desire to eat at all but it doesn’t last forever
Little and often is good advice. I found taking paracetamol about 30 mins before I ate helped with the pain. What may work one day may not the next. Things can change rapidly.
Tell him not to be a hero, but to take the fortisips and use the PEG. I ate right up to the last day of RT then collapsed. The clinicians wanted me to use the PEG much sooner and with the benefit of hindsight I do belive I should have done.
Creamy foods and nothing acidic - for example no tomato soup or tomatoey sauces. I got on well with creamy porridge but then I'm Scottish! Scrambled eggs, probably without the toast. I hated Fortisips - never did like sweet milky drinks - but putting ice in them and using a straw helped
September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 3 years all clear. See my profile for longer story
Make sure he’s getting sufficient calories as nutrition and hydration is vital during treatment and more so recovery. Add extra calories ti everything double cream into soups eggs avocados like Dani says. If or when swallow starts to be difficult start using the peg it’s there to help him.
Trifle custard , cream cakes. Full fat milk high protein yoghurts. Porridge I found little and often rather than 3 meals a day both during treatment and recovery.
Hazel
Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo 3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life.
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