Chondroradionecrosis of the Larynx

Hi Queeny. I’ve popped on because nobody has replied. I can’t recall anybody else reporting this and I’ve had a quick search too. It’s a very rare condition though it does happen. 
Let us know what the tests come back with. One of our other Community Champs, MikeO did have a hypopharyngeal recurrence. If it is that I’m sure he’ll give you lots of good advice. 
Meanwhile fingers crossed and good luck. 

Hi Queeny123,

I am not sure if its the same thing, but I had a problem with swallowing after my radiotherapy and this was because the muscle that controls swallowing stopped working and I couldn't eat or drink anything and had to have a feeding tube as a result.  However, it did rectify itself and I can now eat and drink okay.  As I say, it may not be the same thing, but thought I would let you know anyway.

LadyH66

Thanks for the replies… so we’ve been told that his vocal cord is stuck. He has all the symptoms of coughing, etc and also very bad breath. Fingers crossed whatever it is can be rectified. 

How long ago did he finish treatment? Did his consultant mention radionecrosis? 

Finished radiotherapy a year ago… mention of it via consultant and speech and language therapist. He’s very fatigued, we have episodes of light head redness.. you would think we would see improvement now. We are waiting on final biopsy results.

Ok. Fingers crossed. Xx

Hi Queenie, as Dani said I had a recurrence six an a half years after treatment, although it was actually described as a "new" cancer because it was in a slightly different place (epiglottis). I have no experience of necrosis, but if a laryngectomy becomes an option I'll help in any way I can. 

Wish you both well.

Hello Queeny123, im very similar to MikeO, i do know that they can treat or operate on the vocal cords if possible, maybe a muscle or nerve has become damaged due to the effects of radiotherapy, the bad breath could be down to an infection or hygiene. Fingers crossed for the biopsy results, please feel free to re-post once your dad gets the results, wishing you well,take care.

                                                              Chris x

Unknown said:

so we’ve been told that his vocal cord is stuck.

Vocal cord paralysis can be a long term sequel of Radiotherapy so fingers crossed that's what it is

So we have seen the consultant and the worse news possible. Dad has now been referred to the palliative care team. Tumour is still in the hypopharanx and spread to the trachea. The surgery that has been offered my Dad has opted against due to lots of reasons.