Stuck food pipe tube.

  • 9 replies
  • 85 subscribers
  • 1601 views

 My food pipe is hardly 10mm and I use a 80cm tube daily to dilate it and stop it contracting. It usually goes in quite easily. Of course a stent is the real thing but the doctors refuse to do it. Something terrible happened today which I cant understand and am asking the people on here perhaps to explain it to me and what to do about it. As I say it usually goes in quite easily but if it doesnt then I know it is time for another endoscopy of which I have had about 25. Today this morning it went in very easily but about half way out it stopped. I was in panic with a long tube stuck down my throat. I tried turning it but it wouldnt budge. In the end I used all my strength to pull it out. It seems something was holding it and not letting go. I suppose it was a silly thing to do I could have made myself an injury but I see no  sign of bleeding. My throat has been sore the last few days and that may be part of it. I have been using this tube for quite a few years and never have I had this experience of it going in easily and not being able to come out like a fish in a net. I just dont understand it. It cant suddenly constrict while the tube is inside or can it. I would be grateful for any information since I am scared to use it again. Maybe I need to take some tablets. Thanking all of you.

  • Hi Seeker. It sounds very frightening. I have no experience of an oesophageal narrowing and I’m not a doctor so my advice is to  phone your hospital and ask for somebody to look at you. Im sorry that’s the only advice I can give. I hope it’s nothing or something that can be fixed straightaway. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi  , oh my gosh that sounds so scary and you really have my sympathy. 

    Have to first of all say I've no knowledge of anything really, but an aunt of mine has really bad oesophogeal strictures which requires dilation from time to time, so thought to message her on your behalf. She said that she has been fortunate enough not to have experienced what you have had to endure today so can offer no insight sorry.

    I hope it's something relatively 'simple', mechanical, such as having sucked up air or even stomach content,which in turn would have created an airlock seal. The fact that it was so difficult to yank out may indicate this? 

    Hope you get an answer soon.

    Best wishes.

    Ffixx

  • Thanks to you all I cant speak so cant phone my doctor but have sent one of them an email about it. If I havent disturbed anything then it is not serious in itself except that I cant use the tube. I dont know. I have quite a few doctors and their secretaries in the hospital should I be sending this to all of them or just one at a time till one replies. I shall of course include all your replies. To FFI it is very likely you are right in this. Does your aunt also use a tube like me. Was she also refused a stent. My doctor usually looks down my throat with a kind of camera put through the  nose until I insisted she did it through the mouth. The last time I was there she said because of covid they dont use the camera. It seems to be a very dear camera and she is scared I would 'bite' it but I dont have teeth. It is so dear that other large hospitals like Royal London say they cant afford it. Thanks again. 

  • I may add that my doctor is a world class one and has written papers on this and has a private practice. Is it right for me to send an email to his private practice about this? 

  • Yes do it. You might get an answer quickly. At least it’s Monday Wink

    I had a face2face on Thursday and got scoped no problem. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • In answer to questions re aunt. It's no and no at present thankfully. 

    If it means that you are now unable to follow advise to use the tube daily I personally would probably email your main contact marked urgent requesting a reply by return, as it is your only means of communication. Failing this copy them all in.  

    Best of luck. 

    Ffixx

  • Thanks. I am not sure if you mean that I can email him or not to his private practice. I must say I once needed an endoscopy and the hospital made me wait, so I wrote to him then I would want it done privately, he got me up the queue and on the NHS! 

    I had voicebox cancer but they still radiated my mouth and ruined it. Not being a doctor I would have thought it was far away from my voicebox which they anyway took out. It seems one cant put another one in although I cant think why. Is that different to any other limb which you can transplant. 

  • Good evening seeker1, i agree with the others on here and get an appointment to see your consultant, surely it works out cheaper to fit a stent rather than keep going into hospital to have a dilation. Have you got a short larry tube for now as i know they come in different lengths. Its a good sign there is no bleeding so no damage is done, perhaps it was an air or vacuum causing it to get stuck. Hope you manage to see someone a.s.a.p, take care .

                                                                                                          Chris x

    Its sometimes not easy but its worth it ! 

    Community Champion Badge

  • Thanks. A lary tube is used to maintain the airway and can be following a laryngectomy. (with one R on google) mine is for the food pipe and 80cm long which I stick in right to the end. No other hospital wants to make me a stent since mine doesnt. So far no reply to my emails. They also wont make me a valve to stop acid coming up.