My partner was diagnosed just over a week ago
In that week our lives have been turned upside down
From a niggling sore throat to stage 4 inoperable cancer which has spread to the lungs
Liver disease means chemotherapy is not an option so now what ??
A meeting on Monday will hopefully give us some hope but for now we're in limbo
Neither knows what to say to the other , it's like he's already given up
Has anyone here been in this situation, are medical trials an option for us
So sorry to hear your news
It must be devastating for you and such a shock out of the blue!
There are people here whose cancer has recurred who are having chemotherapy and or immunotherapy. These are options you can discuss with your medical team. Ask them if your husband is eligible for a trial. There are some immunotherapy trials in progress
Macmillan do offer counselling which would help have you been out in touch with a cancer nurse attached to your team?
You could look here too
www.macmillan.org.uk/.../talking-counselling-and-support-groups
I really hope you can find something to help.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Bella. I’ll keep my fingers crossed for you xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Bella
sorry to see this news, no experience of this type. Please take a notepad with you to your meeting - write any questions down before, as you think of them, and write the answers as they are given to you because you will forget some of what they say otherwise.
let us know how you get on but come on here any time with questions or just for support
Sheilagh x
Good evening Bella, so sorry to be reading about your husband and what you are both going through, i personally have not been in this situation, all i can say is dont give up hope as it took three attempts to get to the bottom of my cancer , i never gave up hope. Hopefully there will be a way around this,I will be keeping my fingers crossed for you and your husband,best wishes,take care.
Chris x
Hi Bella .cant add much to what others have said already, apart from when you are speaking to consultants don’t leave until you are clear in your own mind with what they are saying Don’t let them brow beat you, hope you have either a c n s nurse if a Macmillann nurse in with you.
Best wishes keep in touch Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
We have a lovely nurse who's been in all the appointments so far
I'm going to ask about immunotherapies and CBD oil I'll literally try anything
We are still reeling at the moment as only been a few days since we were told no treatment
What we don't have is a timeline and not sure we want one
I feel for every one of you going through this I really do as I know I've never felt like this before
It's good to know there's somewhere to go to chat
So thankyou all xx
Bella, Come and chat or rant any time you need to. I can understand about the timeline. I have always thought that it wasn't in a doctor's gift and anything would just be a guess. I would want to know what was the likely progression but the rest? ........no, I don't think so. That's just me though
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Bella. Sorry to read the news about your husband. My husband had surgery for recurrent cancer late july and following this he has been told that his cancer is now incurable and will return. I found lots of useful information specifically for him by ringing the Macmillan cancer nurse helpline. It helped with possible questions when dealing with consultants, info on different trials, types of drugs etc. Saved hours of research. I think the Macmillan Nurse helpline is open on Sundays to so you could possibly get some info before you go Monday.
Best Wishes
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