Recent diagnosis already advenced

FormerMember
FormerMember
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My partner was diagnosed just over a week ago 

In that week our lives have been turned upside down 

From a niggling sore throat to stage 4 inoperable cancer which has spread to the lungs 

Liver disease means chemotherapy is not an option so now what ?? 

A meeting on Monday will hopefully give us some hope but for now we're in limbo 

Neither knows what to say to the other , it's like he's already given up 

Has anyone here been in this situation, are medical trials an option for us 

  • So sorry to hear your news

    It must be devastating for you and such a shock out of the blue!

    There are people here whose cancer has recurred who are having chemotherapy and or immunotherapy. These are options you can discuss with your medical team. Ask them if your husband is eligible for a trial. There are some immunotherapy trials in progress 

    Macmillan do offer counselling which would help  have you been out in touch with a cancer nurse attached to your team?

    You could look here too

    www.macmillan.org.uk/.../talking-counselling-and-support-groups

    I really hope you can find something to help. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • FormerMember
    FormerMember in reply to Beesuit

    Thankyou so much for replying 

    I've looked at immunotherapy and am praying he can have this 

    Chemotherapy won't be able to happen due to underlying health problems(liver disease) 

  • Bella. I’ll keep my fingers crossed for you xx

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Bella

    sorry to see this news, no experience of this type.  Please take a notepad with you to your meeting - write any questions down before, as you think of them, and write the answers as they are given to you because you will forget some of what they say otherwise.

    let us know how you get on but come on here any time with questions or just for support

    Sheilagh x 

  • Good evening Bella, so sorry to be reading about your husband and what you are both going through, i personally have not been in this situation, all i can say is dont give up hope as it took three attempts to get to the bottom of my cancer , i never gave up hope. Hopefully there will be a way around this,I will be keeping my fingers crossed for you and your husband,best wishes,take care.

                                                                                                 Chris x

    Its sometimes not easy but its worth it ! 

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  • FormerMember
    FormerMember in reply to Hydetribe

    Thankyou it's just so hard 

    A million things running around our heads 

    Have started a list of questions for the consultant 

  • Hi Bella .cant add much to what others have said already, apart from when  you are speaking to consultants don’t leave until you are clear in your own  mind with what they are saying Don’t let them brow beat you, hope you have either a c n s nurse if a Macmillann nurse in with you. 

    Best wishes keep in touch Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    We have a lovely nurse who's been in all the appointments so far 

    I'm going to ask about immunotherapies and CBD oil I'll literally try anything 

    We are still reeling at the moment as only been a few days since we were told no treatment 

    What we don't have is a timeline and not sure we want one 

    I feel for every one of you going through this I really do as I know I've never felt like this before 

    It's good to know there's somewhere to go to chat 

    So thankyou all xx

  • Bella, Come and chat or rant any time you need to. I can understand about the timeline. I have always thought that it wasn't in a doctor's gift and anything would just be a guess. I would want to know what was the likely progression but the rest? ........no, I don't think so. That's just me though 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Bella.  Sorry to read the news about your husband.  My husband had surgery for recurrent cancer late july and following this he has been told that his cancer is now incurable and will return.  I found lots of useful information specifically for him by ringing the Macmillan cancer nurse helpline.  It helped with possible questions when dealing with consultants, info on different trials, types of drugs etc.  Saved hours of research.  I think the Macmillan Nurse helpline is open on Sundays to so you could possibly get some info before you go Monday.

    Best Wishes

    BrandyGirl