I know I posted that he was cured a couple of days ago, we were told he was and that it was gone, he went in for a check up on his scar today and they told him that they pulled out some still active tumours that they didnt know was there/ the biopsys didn't pick up, they've told him that he can't have anymore treatment or operations but have a suggested a tablet treatment and I just need to know what this tablet treatment is, although I think deep down now they are life prolonging aren't they? Not a cure treatment.
I've done my screaming and crying I've gone through the utter shock of suddenly having good news ripped straight out of my grasp, I didn't even think it was possible to feel so much pain and sadness at one point, I was told he was cured, I was told he'll be at my graduation, I was told he'll see he'll see his grandchildren that he'll walk me down the isle and if I'm correct I've just been told this is going to kill him right? I feel shocked utterly betrayed, like my nightmares have just manifested themselves.
I don't know if anyone can relate to this? I hope so I just need to know the facts that aren't sugar coated, and whether this tablet treatment is a cure or a prolonging thing, im not sure how I should be thinking and feeling, I'm feeling pretty numb at the moment like the world is doing everything it can to knock us down, we had at least 2 weeks of relief though thinking that we had done this and that everything was okay, and I'm grateful for that time we were given, of anyone has any advice I'd be most grateful to hear it, thankyou everyone. Xx
Oh Acornette this is such unwelcome and worrying news. You can't be left in limbo like this without an explanation of what they mean. Can you get in touch with your dad's consultant's secretary and schedule an urgent appointment so that you can all sit down to listen to an explanation? I don't know of an oral chemotherapy for HNSCC. I hope you get some sort of answer as you shouldn't be left dangling coming to conclusions yourself. They must at least have arranged some sort of follow up. You could go with your dad. Wishing you all the luck in the world
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
This is so unpleasant to read Acornette, how can they miss these tumours and find them so suddenly, i think they owe you and your dad a big explanation. Please do not take no for an answer until they tell you their reasoning behind their decision. As Beesuit said you need to have a meeting with the consultant and his team, I know these things can happen but not so early after a procedure. I honestly have not heard of a tablet treatment, I wish I did so I could give you some advice. Hang on in there and see what they say as something does not ring true. I wish i could give you a hug, we have all got to know you on this forum so we will offer as much support and advice we can , please take care and try and keep strong, both of you.
Chris xx
Its sometimes not easy but its worth it !
Acornette I'm so so sorry to hear this, u all must be absolutely devastated with this news, but as all the others have said, demand answers, u have every right to demand answers and to explore every possible solution available. Sorry i can't help with any tablet info but I'm sending u all hugs and well wishes across the water 
