Nearly 1 week post trwatment !!

FormerMember
FormerMember
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Hi folks

Hope you are all staying safe and keeping as well as you all possibly can.  I've been a bit quiet on here for a while as Harry was unwell and spent nearly a week in hospital. Well he has been home a week now, treatment ( last chemo/Radio finished on Tuesday. 

He's doing ok. Mucus seems to have subsided about 4 days ago . He had about 10 days solid of this. The nebuliser I purchased previously definately helped, as did the humifier - absolute godsend!! Pleased I already had these in thanks to advice of this group - especially Yoda !! Imagine trying to buy one now ??

He has also gone on to a night time feed refine which is brilliant, less stress for him. He's currently taking MST x 2 daily, Oramorph a couple of times a day with paracetamol if needed. 

The past 2 mornings he's got up showered, teeth routine etc and felt so dizzy/drained he's had to return to bed and tends to get up late afternoon. I keep an eye on his bp and it does tend to drop a little which I'm sure is the cause. I'm not sure when we return for 1st check after treatment but believe it could be the end of next week ( 10 days) post treatment. I'm certain it will be a telephone conversation though - hopefully !

Keep safe everyone x

DEFINATELY up for a meet up.

Lisa x

  • Good to hear Lisa he got through his treatment just in time, I really do feel for anyone now in the middle of it or just starting; must be a nightmare.

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    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

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  • FormerMember
    FormerMember in reply to MikeO

    Hi Mike

    Absolutely , been reading through some of the posts. There is so much uncertainty with all this going on. I know just last week when I was visiting Harry on the ward it was limited to only 1 hour ( it was an hour's journey to get there ) and had to be the same person for the whole of the duration of hospital stay. I believe they have stopped visiting altogether now. 

    Worrying times indeed

    Stay safe

    Lisa x

  • Well done 

    Id like to welcome Harry back to the land of the living. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Welcome back. Great to hear from you.

    Hope Harry continues to make a good recovery. Ken is 10 weeks post treatment so please shout if I can offer any advice. 

    xx

    Sharon xx

    Hubby - Left tonsil squamous cell carcinoma P16 positive with neck nodes T1N1M0 - 30 fractions of radiotherapy and 6 weeks of chemotherapy, Cisplatin in December / January 2019/20

    Me - Invasive lobular breast cancer - Grade 2, Stage 2 - mastectomy October 2019 - 15 fractions of radiotherapy December / January 2019/20 

     
     
  • Hi just in  case you are  wondering who is Yoda ! It’s me Lisa gave me the nickname weeks ago ,as she thinks I am the wise one lol. 

    Wait till she meets me only thing  I’ve got in common with Yoda is I am 5 foot nothing and look up to everyone lol. 

    Stay safe everyone we can do this 

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/