Covid 19

FormerMember
FormerMember
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Where to start, everyone was phoning me when they heard the news and was told they had a rota made up ready to take me to treatment on Thurs and Fridays (days I won't have the car) . This thing appears nobody wants to do it incase they "infect me".I would rather people tell the truth and say what they really think. People want to be seen to do the right thing but when chips are down------:

Sorry I'm not a vindictive person just a rant Thinking

  • Only they will know their true reasons, but I've found a lot of people around you get scared when they have to deal with your cancer.  Full of good intent, but the act of helping brings to a sharp focus their own mortality.  You find out who your truly strong friends are.

    Good luck with the treatment - and we all need to rant occasionally.

    Peter
    See my profile for more details of my convoluted journey
  • Hi, manup1, As Peter has already said, when your back is to the wall, you will see who your real friends are. This can  apply to family members too.

  • That must be horrible - feeling your ‘friends’ are deserting you. BUT THEYRE RIGHT. If they have the virus and don;t know, sitting in a car with you is a good way of passing it on, and assuming you’re having chemo, that puts you at massive risk. I don’t know the answer -public transport not ideal and a hospital car has same risk. But your friends are correct to worry about your risks. PLease discuss with your team. If you have a friend who is close to being in isolation, and many are, they may be a good option.....Sorry its another anxiety for you. If your other posts are anything to go by, I dare say you will find an amusing side to this...

    Hilary

  • FormerMember
    FormerMember in reply to PFJTHS

    Hi this whole business has many unsurities (?) Decisions made,decisions changed. Teeth before therapy a must, then may have to get done after therapy. Is it worth putting a pause on r/t before it starts. There is cases of treAtment being halted half way through.which can be worse .

    Paul

  • Paul. 
    I’m sure your team will resist delaying RT. 
    SCC is an aggressive fast growing cancer. I asked the girls doing my mask and planning scan about RT over Christmas and New Year when mine was scheduled. They told me that because of the nature of oropharyngeal tumours they would be making up the time by either stopping the following weekend break or giving me two doses on one day when appropriate. 
    As for your friends not ferrying you about I agree with Hilary. 
    As for friends’ well meaning comments I regularly got, “Oh, that’s awful for you” followed by a long diatribe about some friend/relative/ colleague who had a protracted fight with cancer then died horribly! 
    What are some folk like???????

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • FormerMember
    FormerMember in reply to Beesuit

    WHAT are they like right enough. Waiti g on call back from hosp. To keep me up to date. Work re pay.uncertainness of it all. It's dose to happen Monday, my face wouldn't fit through a door never minTrain2my mask ,Train2Train2

    paul

  • Im so sorry that you find yourself in this position I'm sure they are not doing it because they don't want but its because they have been told not to take risks. Maybe you could suggest to them into wearing masks so you both can wear them. I don't really know of any other instant options. Please don't let this get you to upset as you have been so upbeat and supportive throughout your journey so far, as Dani said I very much doubt they will cancel halfway through as its defeating the object. All the best in these sometimes difficult times.Virtual hugs all around.

                                                                                    Chris   

    Its sometimes not easy but its worth it ! 

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  • Hi Paul

    You aren’t on your own we’ve all probably been   through similar scenarios , in my case sister in law was going to cook for john when    I couldn’t eat .She took great delight in my cancer in first few weeks but no cooking ever appeared , instead she spent most of time telling people who we vaguely knew how much support she was giving us ,Imwondered how my diagnosis spread through village so quickly.How did I know people crossed the road when they saw me coming .

    Like others say to start with people are supportive then they realise s.t this is real .In the end John got made a chilli with baked beans !!!! Needless to say he binned it 

    stay strong we will become your new mates , remember we’ve been there got the  t shirt read the book etc 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Paul like everyone says they won’t cancel once treatment starts it continues, I had a bank holiday in middle of mine so I got the Monday off yippee but had to go in the Saturday before so had 6 in one week then 4 the week after .

    we will get you through this

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Morning Paul

    I think its fair to say cancer treatment is going to be difficult in these unprecedented times.

    I absolutely don't envy you at all.

    At the hospital we went to (James Cook, Middlesbrough) they offered patient transport. Can you use that?

    Re the "friends", I think this is common in ordinary circumstances but in these circumstances its perhaps understandable in that friends / family don't want to give you Corona or catch it themselves.

    Of course it may just be that they are not very nice.....I don't know them. We found we got the most support from the most unlikely people, mainly my work colleagues who also took Ken under their wing. Some cousins and 1 friend rose to the challenge and the others were useless and just left us to get on with it.

    Ken's radio was through the Christmas period so he had to do Saturdays as well. This facility was only available for the urgent H&N cases.

    I can't even imagine your stress levels right now. Chin up and keep going!

    Sharon xx

    Hubby - Left tonsil squamous cell carcinoma P16 positive with neck nodes T1N1M0 - 30 fractions of radiotherapy and 6 weeks of chemotherapy, Cisplatin in December / January 2019/20

    Me - Invasive lobular breast cancer - Grade 2, Stage 2 - mastectomy October 2019 - 15 fractions of radiotherapy December / January 2019/20