Xylimelts

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Hi everyone 

I wondered if you get the mint free or mint flavour xylimelts? 

I am going to try some from Amazon,   3 weeks done radiotherapy for stage 1,  hpv16 lesion base tongue.  My GP referred quite early & Kent & Canterbury reacted impressively to be honest with appt next day.

Had peg tube in yesterday (sore!!) altho still eating (mush!), and drinking at mo.  Lost appetite thru stress tho! Very dry in night though and biotene not really helping. Has anyone tried gargling with baking soda?? 

Thank you 

X

  • FormerMember
    FormerMember

    Hi Hattie 

    I can not comment on clients but have purchased some for my hubby for later on recommendations from those in this he. I promise you , you will get replies soon. 

    My hubby is base of tongue with 1 affected lymph. T2 N1 M0.

    His RIG is being fitted Monday and treatment starts Wednesday 6 x chemo , 30 x radio for 6 weeks.

    Welcome 

    Lisa x

  • Hi Lisa,

    Thank you, yes fingers crossed they are good.

    Mine was T1, NO, MO but they do a lower dose/sterilisation radiotherapy on lymph nodes anyway like a belt & braces thing apparently.

    Hope all goes well with your hubby.   X

  • Wow totally impressed with speed of Tx

    Soda bic and salt i found helpful 

    xylimelts need a little Saliva to work but sticking the tablet to your gum then taking a tiny sip of water to wet it often gets it going. I like both flavours 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you.  Yes I think I'll try soda bic too.  Did you just rinse mouth or gargle? X

  • Hi 

    i only use the mint free ones as it was early days when I first started using them and my mouth was pretty delicate so avoided mint. Re bi carb n salt mix or baking powder I’ve used both please just gargle as to swallow it is pretty revolting. 

    I am niw 18 month post treatment for tonsil cancer and still use 1/2 a xyimelts every night they are a godsend to me anyway I now get 8 hours sleep with a few sips of water in night don't even wake up properly as my fit but doesn’t show awake time if that makes sense 

    good luck 

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thanks Hazel,  have ordered mint free.  Will try bi carb later Rolling eyes... 

    Xx