Hi everyone
How much are you paying and where are you getting them from?
Mouth Ulcer Shop Online - about £8.20 a box. Last time I ordered them I Had given up hope of a dramatic improvement and ordered 10 boxes! Sadly think I’ll always need them, but they are amazing for preventing night time waking up with horrendous dry mouth. Love them.
Note to Lisa - your husband may find he cannot use them until after the ulcers at end of treatment have subsided - might antagonise. Don’t know myself as didn’t have Xylimelts then, but someone on here mentioned mouth too sore to use them until all healed up...
Hilary
Hi
We order from Amazon £9 for box of 40, free delivery.
it says there’s a newer version, £10.50 per box but I can’t see the difference other than the price.
Sharon xx
Hubby - Left tonsil squamous cell carcinoma P16 positive with neck nodes T1N1M0 - 30 fractions of radiotherapy and 6 weeks of chemotherapy, Cisplatin in December / January 2019/20
Me - Invasive lobular breast cancer - Grade 2, Stage 2 - mastectomy October 2019 - 15 fractions of radiotherapy December / January 2019/20
Thanks everybody
I have got them from Amazon but I get Oranurse at the same time and Amazon’s price is ridiculously expensive so I tried somewhere else. Then my GC paste plus comes from somewhere else yet again. Sigh!
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi
Mouth ulcer shop online £9.95 for 40 with discount if you order more, i get hubby to break in half with his thumb nails he can break them in half if he puts right amount if pressure on with nails back to back we tried all different ways to break them including his woodworking Dremel tool !!!!
i find now 1/2 of one is enough to last me through the night so I must be improving !! Or I am just a tight Yorkshire lass 2 boxes last me 180 night bargain.
Yes anyone’s in treatment or just starting recovery your mouths will be too delicate to use them , trust me I tried was about 10 weeks or so before I could getbthe benefit of them .
Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
And I think you need a little saliva for them to work.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi yes well remembered you do need some saliva for it to stick to cheek.Thats knee if the main reasons people who try it too early can’t get in with it.
your GC tooth mousse what flavour do you get? And where from please.
Think you have got your tooth extraction this week ? Good luck sending hugs
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Hazel
I get the GC MI paste plus which has fluoride added.
https://www.crmgloballtd.co.uk/shop/gc-mi-paste-plus-mint-40g/
It comes in Vanilla Peach and strawberry
I tried strawberry and it is gross!
https://www.dentaldirect.co.uk/mi-paste-plus.html
Busy week this week.
Bloods at doctors and hygienist at dentist on Tuesday
Tooth out in hospital on Wednesday
Acupuncture on Thursday.
I have a good supply of Fortisips ...oh joy!!!
so that I don’t have to eat anything for a few days in an effort to not stress the socket blood clot!
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Dani
Thank you will try the vanilla knew m it can match my Ensure drinks , yes I still get some from g p every so often like to have some in for this evening days when whatever ive cooked doesn’t want to go down ! Yep 18 month on or as John counted 520 days since treatment finished and on odd days I revert to an Ensure .
Plus when we are driving down to Spain I find it handy to have a few in car for those just in case moments . Another tip for all the newbies out there food and hydration are really the key to cracking recovery.Even now if I have a bad food day I pay the price the next day, henceforth the small supply if Ensure I still get from Drs am not talking hundreds of bottles , i get a case of 48 small bottles every 6 month or so , the surgery is happy to,prescribe it I have I explained why. So different from when I really needed them and we had to battle and involve dieticians at hospital all due to budgets !!!!
On another point radiation fatigue is like something from another planet ,it strikes without warning so beware ! Doesn’t last forever there light at the end if the tunnel honestly.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007