Post treatment PET scan

My appointments at the time were every six weeks. My PET/CT was supposed to be booked between two but I got an appointment in one week, with results to the consultant three days later.  So..... I had to wait five weeks even though MDT meetings were every week. Pants!

I'm quite lucky then as wont be waiting that long! 

My rational brain tells me all will be well but that tiny negative nugget creeps in. 

Wishing you well in your recovery 

Kelly xx

Hi Kelly, well done so far, im pleased you have had a scan as i think it gives peace of mind although on the downside the waiting does cause us to worry. I would say if you don't hear anything after a week then it should be good news but you can always phone up for the results if you are worried. Stay positive, all the best .

                                                                                                 Chris x

Hi Kelly. I’m so sorry you are in this position it is truly very tough. Once that scan is done, you just want to know the result and get on with your life. What might happen, it does in my unit, is that the Head & Nurse rings a patient up if the scan is clear - they offered me this, but I declined because no phone call would then mean.........a horrible wait and impending sense of doom. So I waited it out and heard from the Oncologist in person, at least she would have had a plan if it was bad news.

It’s not surprising that you feel emotional - I certainly did. Ask friends and family to call in, take you out, just keep doing stuff. The dark moments and angst still come, but there is less time. And don’t be afraid to ask your GP for a sleeping tablet  - its a temporary thing, and I needed it more at your stage than I did after diagnosis.

I was told by a counsellor not to dwell on the possible “bad news” scenario. There is a much higher chance that the  news will be good rather than bad - so you must spend more time dwelling on the possible GOOD news. That’s more difficult when you’re alone and thinking......but try it.

Wishing you all the best in the coming days

Hilary

Hi Chris

Once again thank you for your words of wisdom! 

Much, much appreciated. 

Kindest regards

Kelly x 

Hi Hilary

Thank you so much for your post - I'm feeling better/more positive already. 

I'm seeing my counsellor next week so will discuss further with her. 

I really appreciate you taking the time to reply. 

Kindest regards

Kelly xx

Hi Kelly

brill new season youve  made it through treatment and recovery I wanted 14 days for my scan results,they have to be reviewed by yiur m d t team and 2 consultant s have to verify them ,somjust go with the flow remember how far youve  come , if yiu are worrying see if yiur appointment can be briughtbforward a week if resukts are ready if course. I know they don’t give info out over phone m just find a good box set settle down and try and keep occupied. Like I said yiuve dine the hard but .

Hazel xx

Hi lovely

Thanks Hazel! 

I've got a busy couple of weeks so I shouldn't have too much time to dwell. 

I had no idea how hard post-treatment was - it's been a real learning curve.  

I hope you are keeping well

Kindest regards

Kelly xxx

Hi Kelly

thank you , I am now 15 month post radiotherapy am doing well still have saliva issues ,but the saliva seem so to be improving slowly. Watch our for thrush many of us seem to get it just when you think things are looking up.Took me months to get rid of it finally .

Keep busy ,at least yiu can get some Christmas shopping done ,good luck and look forward to you sharing your results 

Hazel x

Hi Hazel

Thanks for the heads up. 

I'm suffering with reflux. I was panicking as my throat was sore but eased up after I had taken omeprazole.  

Will let you know how I get on

Kelly xx