afternoon all, so after chemo/radiotherapy finished 29th november, and the nurse saying just use the next 5 weeks to recover, enjoy xmas, mmm, you wont hear from us until new year , so then appointment comes in for 30th dec,with the surgeon, then letter from radiotherapist oncologist discharging me, dated 1st dec, clearly shows will be requesting ct pet scan within in 4 weeks ready for surgeon appointment.
so blind panic set in, sems 30th will be another big day, one way or the other, has treatment helped, 4 chemo, 25 radiotherapy sessions, assuming pet scan will show what the little sh~ite has been up to. now i thought i had these big milestone appointments all under control, until friday 6th went back to wycombe breast cancer department, where it all started a year ago with a masectomy, was fine in the morning, even got my hair blow dryed, put on a dress, just to walk back in there feeling some part female, no just lost it literally as we set off. so upsetting walking in, then walking out, pretty much discharged. doctor did say for today you are clear of breast cancer, but you must be daily vigilant with what has now happened.
did tell hubs i didnt know how friday would make me feel, but it wasnt going to be high five type of feeling, so not sure why it came as a shock. one day off from crying behind those blimming blue masks would be nice thank you father crimbo .
how the hell do i deal with what i am going to hear on 30th, and how do i cope with each day until then, on top of that husbands hernia op is now booked for 20th dec, as he had put it off whilst all my treatment was going ahead. trying to take deep breaths, glass half full, etc, but friday going back in there just took the living breath out of me.
thank you for listening, still feel so tired and rough after just one week of the treatment finishing, which they did say would happen for more than 2 weeks, dont know my ass from my elbow at the moment. maybe its the whole xmas thing, and its only us 2 which maybe is making it all so much more intense.
jules x
Hi BilBob - well you certainly do need friends. I'm not sure,but maybe like me, don't have kids? I have a stepbrother and sister, but, we are not close. So, basically all I have is 'him indoors' and my two black cats!
It's really hard to try and explain to people who don't know how it is - when you have CANCER - I thought mine was gone, but 19th December, I am going for a MRI scan,liver and spleen, as they saw something on my last CT scan - liver area! I already have no large bowel, due to a very aggresive cancer tumour and now have this disgusting STOMA.
Anyway, take care dear.
fatz
Life sucks for sure - you never think that CANCER will get to you - you only see it on tv or from one of your family who has it. Not very good at this stuff anymore,I try so hard to get on with a 'normal' life - I was told when I had my iliostomy, that I would be able to have a normal life,what a effing joke! Wearing a stoma bag is not normal and is classed as a disability in UK. I had to contact my colorectal nurse yesterday,because I felt bad contacted my GP surgery and GP phoned me quite quickly,.
Hi Fatz
I feel really lucky as I've got a great support network with friends and family. I live with my partner and I've got two boys, one aged 22 and is at Exeter Uni, and his 27 year old brother who has special needs and lives in supported living. I'll be having my 2nd lot of post-op FLOT next week at a reduced dose which tbh I'm happy about because I will hopefully recover faster
Hello Fatz, you're right about cancer being something that affects other people until, suddenly, we become part of those other people. And there are so many! I never realised. My husband is downstairs in pain from his sore mouth and I feel useless because I can't help. But he'll bounce back in the morning, ready to take it all on again for another day. He's an eternal optimist. We are lucky to have children old enough to support him and an extensive family on hand when we need them. Lucky, indeed.
Thank goodness for pets, too xxx
Hi BB, hope all goes well for you. So your oldest son is living nearby?
fatz x
Hi Fatz
Yes he's not too far away, in Worcester. He comes home to see his Mom and Dad every weekend too so I get to see a lot of him tbh
Anthony x
So nice to hear that Anthony - it's always difficult I think,but as long as you are all happy and get help. Will he be with you at Christmas for the day? Does he have a name?
fatz x
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