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Last Flot tomorrow, CT scan on the 1st Feb

Jenjen6
  • 1732 replies
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Hello 

I have my last FLOT tomorrow, 4 in all, I have also have 2 rounds of Carbo and Etoposide. I have my CT scan on the 1st Feb as they plan is to operate so I have fingers and toes crossed they I will still be on this pathway.

The Flot has been tough as people say, the Oxy-legs were terrible!! the two week turn around has given me about 3 days of normality. I would like to thank those that offered side effect advice as it really helped me to be proactive with the Meds.

The change for me is  from Oct to early December I was not able to eat food, shakes only. I am now eating normally, I have attempted spicy food, like a curry Heart eyes. I find I need to eat more often or I get like an empty discomfort, not sure what that's about?  My sternum feels sore sometimes also? fingers crossed these are gastral related to the growth but I guess it must of shrunk as I can eat.Grinning

I am so looking forward to some weeks without Chemo but also apprehensive, it will be back to that waiting place, and this is it, which pathway? I wish I had not been told IT was high grade, this bit really sticks in my head!!Fingers crossed

What lovely blue skies I have in the south at the moment, beautiful Sunny

  • in reply to Paly

    Morning Alistair sorry to hear about your day I'm sure you could do without the running around right now!! But pleased that it turned out OK for you . I hope today is a better day for you Pray 

    Andy was very tired yesterday and loosing his sense of taste but otherwise he's doing well hopefully today will be kind to him and to you too.

    Have a good day Alistair 

    Best wishes 

    Vonn +Andy 

    Xx

  • in reply to Paly

    Hi Alasdair,

    Thst sounds like a rotten way to spend your day. How much feed are you currently receiving through your feeding tube? CB

    Cool Blue

  • in reply to Paly

    Hi Alasdair 

    You are certainly getting a fair share of complications really hope that's the last one for you.

    At least they got it sorted out for you fairly quickly.

    Still waiting for my results of the scan done nearly 3 weeks ago. It's my birthday today and was hoping I would hear something. To get the all clear would be the best present ever.

    Hope you fair better today my friend 

    Best wishes 

    Dean

  • in reply to Vonn

    Morning Vonn and Andy

    Poor Alasdair is really having some complications isn't he. This journey really is a tough one.

    Hope Andy is doing ok today. Loss of taste is quite normal I had that for a while. It's the neuropathy you really need to keep an eye on as it can become permanent. My last round was stopped because of it.

    Still waiting for my scan results, might chase them today as we are supposed to be seeing oncologist on Tuesday next week

    Best wishes 

    Dean

  • in reply to Cool Blue

    Hi CB 

    How are you getting on I haven’t heard from you recently although as your aware I’ve had my fare share of complications to deal with 

    I’m currently having 500ml over night about five and a half hours although I keep asking the dietitian if I can reduce this and maybe have the tube removed, but up to now that a big fat NO!

    I’ll keep trying and hopefully in the not so distant future I’ll be tube free

    Best wishes and take care

    Alasdair

  • in reply to Bilious Bob

    Hi Bilious Bob

    ive been led to believe that the JEJ feeding tube is normally left in until the establishment are sure you can maintain your weight orally or until you finish post operative chemotherapy 

    Alasdair

  • in reply to Grandad65

    Happy Birthday Dean. Thank you for all your advice and help on this forum. Hope you get good news next week.  Have a lovely day,

    Amanda 

  • in reply to Grandad65

    Happy Birthday young 'un! Lol Joy 

  • in reply to Bilious Bob

    Hi Bob

    Thanks very much, only 59 but feel much older Joy

  • in reply to Crochetherapy

    Hi Amanda 

    Thank you that is so kind. Will enjoy my birthday as best as I can as recovery seems to be a bit slow.

    Happy to help in any way I can

    Best wishes 

    Dean

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